Frustrated- No one knows how you feel- Except you...

Posted by brian9711 @brian9711, Nov 20, 2023

Doctor says your fine based on tests, I don't feel fine, it's like no one cares. Been healthy my whole life, am 50 and this feels bad. What should I do next?? Need help please.... Based on all the test results, I feel like an "A" student that is failing..

Duration:
Approximately 6 months (have become slightly more constant), no significant change in pain levels

Most common Symptoms:
Flank/side pain sometimes on left/ sometimes on right, sometimes on both sides. More often when walking, not really impacted by jogging or other exercise- This pain is almost always a semi sharp pain, same whether on left or right side. Not as prevalent in morning, more common as the day goes on. Most common location of pain is left side.
Pain directly under the shoulder blades, less common than the flank pain, sometimes on left/ sometimes on right. This pain is almost always a mild pain, same whether on left or right side. Not as prevalent in morning, more common later in the day.
Midback pain, less common than the flank pain, almost always a “dull” pain that feels deep within the back. More at night, sometimes feels like a burning in the back, but this is rare.
Other symptoms
Headaches (not common, but I don’t typically get headaches very often)
Sensitive nipples (within the last 2 months)
Body tremors and anxiety over “stupid things” like making dinner, my hands will shake
Insomnia- Extreme difficulty sleeping, never been a good sleeper, but the last 6 months, prescribed sleeping pills do not work, melatonin does not work, nothing works, typically takes 1 ½ -2 hours to fall asleep, wake up multiple times during the night

Note: I haven’t lost any weight, but I have been eating more to maintain weight, feels like I am eating at least one extra meal a day. I started working out again about a month ago, and actually have not lost any strength and cardio has slightly improved, which is weird.
Tests Completed (nothing identified a potential cause for these symptoms)
• Lung CT Scan
• CT Abdomen (Upper endoscopy)
• Back X-Rays and MRI’s (Multiple- Lumbar, thoracic, and cervical)
o Note- I tried explaining to the clinic I was pretty certain it was not a back/spinal issue, I can jog, lift weights, rake leaves, mow grass, stacked 5 face cords of fire wood, none of this makes the pain any better or ay worse, it doesn’t really matter what activities I am doing.
• Kidneys- Ultrasound
• Multiple blood tests – All have been within anticipated ranges

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@michaelhall

Have any of the sleeping pills you've been prescribed then in the benzodiazepine family or perhaps the barbiturate family. For benzodiazepines I think the best is restoril and the second dalmane. Things like melatonin are meant to put you to sleep at night keep you to sleep.

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I'm sorry I meant to say melatonin will put you to sleep but not keep you sleeping and typically you build up a tolerance on the second or third night.

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@ednilsson67

Do you know of any good doctors that prescribe hope and help for severe panic attacks and MDD depression ?
Thanks

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I live in Las Vegas, NV. Where do you live.?
My doctor here can help you.
Dan

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@michaelhall

Have any of the sleeping pills you've been prescribed then in the benzodiazepine family or perhaps the barbiturate family. For benzodiazepines I think the best is restoril and the second dalmane. Things like melatonin are meant to put you to sleep at night keep you to sleep.

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I only take Clonpin 2 every night.05mg
Dan

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That's good that you are stable.i wasn't in 2022 but came back to the world mid 2023.im doing better than I have been now with depression and anxiety.new Dr new meds work better added ability on top of it all.thanks for chatting once again I'm happy you're stable

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This may not be a good answer for you, but if it were me, I’d find someone with access to ChatGPT 4 or the new Microsoft AI program and feed into it ALL your symptoms and see what it comes up with.

These programs are not perfect, can they can scan through enormous amounts of research and medical references and may find a connection between your symptoms. I’d run a list with all your medical related symptoms, but then also run one with things that aren’t typically asked by a physician, like do you have gingivitis, exposure to someone who’s had a CoxSackie virus (Hand, Foot, Mouth disease, more frequent at daycares), etc.

Here’s an article from Scientific American about the AI programs:
https://www.scientificamerican.com/article/ai-chatbots-can-diagnose-medical-conditions-at-home-how-good-are-they/

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@triciaot

This may not be a good answer for you, but if it were me, I’d find someone with access to ChatGPT 4 or the new Microsoft AI program and feed into it ALL your symptoms and see what it comes up with.

These programs are not perfect, can they can scan through enormous amounts of research and medical references and may find a connection between your symptoms. I’d run a list with all your medical related symptoms, but then also run one with things that aren’t typically asked by a physician, like do you have gingivitis, exposure to someone who’s had a CoxSackie virus (Hand, Foot, Mouth disease, more frequent at daycares), etc.

Here’s an article from Scientific American about the AI programs:
https://www.scientificamerican.com/article/ai-chatbots-can-diagnose-medical-conditions-at-home-how-good-are-they/

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Sorry, these programs are NOT perfect - I missed putting the word “not” in my comment. I was unable to edit the original. Maybe the edit option goes away after a certain amount of time? I hope people don’t find my comment too upsetting. I do like technology but AI right now is in its infancy.

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@triciaot

Sorry, these programs are NOT perfect - I missed putting the word “not” in my comment. I was unable to edit the original. Maybe the edit option goes away after a certain amount of time? I hope people don’t find my comment too upsetting. I do like technology but AI right now is in its infancy.

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There is no editing ability, which bothers me because I posted something without an end quote. AIEEE!

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@triciaot

Sorry, these programs are NOT perfect - I missed putting the word “not” in my comment. I was unable to edit the original. Maybe the edit option goes away after a certain amount of time? I hope people don’t find my comment too upsetting. I do like technology but AI right now is in its infancy.

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& @blackcat You do have the ability to edit your post for 2 hours. There are 3 small dots at the lower right corner of each post. If you are the author and click there, the option "Edit post" will appear.
Once you make your edit, be sure to click "Save"
Often my fingers dont' do waht my brain says, and I ned to fix things...I alwyas pause and reread my psots before I go n to the next message.
Sue

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@blackcat

There is no editing ability, which bothers me because I posted something without an end quote. AIEEE!

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Oh @blackcat, you sound like you might be an editor. Mistakes like that erk me too, more than they should. As @sueinmn mentions, you can edit your own posts within a 2 hour window.
If that time has passed, you can simply report it with the correction and the moderating team can edit it for you.

To report a post:
1. click the 3 dots in the bottom right of the message.
2. Write the edit you'd like us to make.
3. Submit.

@triciaot, would you like me to insert the "NOT" in your original message?

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@colleenyoung

Oh @blackcat, you sound like you might be an editor. Mistakes like that erk me too, more than they should. As @sueinmn mentions, you can edit your own posts within a 2 hour window.
If that time has passed, you can simply report it with the correction and the moderating team can edit it for you.

To report a post:
1. click the 3 dots in the bottom right of the message.
2. Write the edit you'd like us to make.
3. Submit.

@triciaot, would you like me to insert the "NOT" in your original message?

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Oh yes please! I had missed the 2 hour window. I worry that people will read my first comment and not the correction! 🙁

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