fructose intolerance/malabsorption

Posted by mkenn @mkenn, Jul 5, 2016

Is anyone taking a particular enzyme which allows your system to break down carbs and sugars?

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Profile picture for CL @lelia

I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?

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Was just responding to other comments!

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Profile picture for CL @lelia

Undigested food fermenting in the small intestine is probably small intestinal bacterial overgrowth (SIBO). Have you been diagnosed with that?

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I had some when they did my scope at Mayo but fruit and some fibers also ferment when I can't digest them properly. The next day after cutting out fruit was finally off my meds I had been on for 20 years.

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Profile picture for CL @lelia

No need to apologize! Welcome! Definitely you can have a delayed reaction! Especially in the case of fructans (chains of fructose) but also with fructose. For me if delayed it is usually 8 hours or so, so I eat iffy things in the morning. I find a reaction depends partly on how much fructose/fructans is already in my system. If I have closely followed the diet for three of more days I can usually get away with eating something I couldn't if I'd eaten something I shouldn't have the day before. It is very difficult to find a pattern; it took me about 10 years. Why don't you try the diet I've listed in this fm discussion section? I think it is on about page 5. Fructose is in tons of stuff. You may need a _no_ fructose diet; that's the case with me for the most part. I can't even digest artificial sugars. Best of luck.

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Thank you! I will take a look at the diet. That's crazy that a reaction can happen so long after eating something bad.

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Profile picture for CL @lelia

I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?

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I just found out I have sucrose intolerance. Every time I ate I had severe gas and distended abdominal. I want to know how anyone can afford Sucraid?

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Profile picture for sue6408 @sue6408

I just found out I have sucrose intolerance. Every time I ate I had severe gas and distended abdominal. I want to know how anyone can afford Sucraid?

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I've never heard of sucrose intolerance. Will have to to some research. Since sucrose is a combination of fructose and glucose, have you been tested for fructose malabsorption? I have fm and cannot tolerate sucrose or glucose.

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Profile picture for sue6408 @sue6408

I just found out I have sucrose intolerance. Every time I ate I had severe gas and distended abdominal. I want to know how anyone can afford Sucraid?

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It's a fructose intolerance or malabsorption, never heard of Sucraid but best things is to cut all all fructose, fruits, sugars ect

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Profile picture for CL @lelia

I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?

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How is this problem diagnosed and what kind of symptoms do people have?

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Profile picture for saucy @saucy

i have it for sure, no doubts!! My point is tests are not always accurate!

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I think that is so true. A lot of tests with "numerical values", like lab tests, are based on statistical averages for what is "normal", but there are always people who fall outside of the 'norm". "Old school" docs say you always have to listen to the patient, not just rely on the test results. I think now often docs rely too much on the tests and numbers.. for example, maybe your colon or stomach emptying isn't "slow" per the official numbers, but maybe it's slow (or fast) enough to be causing trouble for you as an individual if you have symptoms related to that. So you treat the symptoms.

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Profile picture for elle1233 @elle1233

How is this problem diagnosed and what kind of symptoms do people have?

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It's a breath test but I had it done before I had the Linx surgery and it was negative. The best way is the elimination diet. I was still on PPI's after surgery and once I cut out fructose with in a day I was off meds. Now if I have any I react to it. It's in everything, on whole foods diet, cook everything myself so I know what's in it.

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Profile picture for saucy @saucy

It's a breath test but I had it done before I had the Linx surgery and it was negative. The best way is the elimination diet. I was still on PPI's after surgery and once I cut out fructose with in a day I was off meds. Now if I have any I react to it. It's in everything, on whole foods diet, cook everything myself so I know what's in it.

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TY! So, it was that dramatic, cutting out fructose and you felt better? What kind of symptoms were you having?
Yes high fructose corn syrup is in so many things! I've been trying to cut it out for general health reasons, and it's amazing what it's in. I've never tried no fructose for any length of time. Basically you are cutting out fruit and things with high fructose corn syrup?

I have some documented problems but still at a loss for what is driving my problems, and as far as diet, I have no idea what to do - it seems eating in general bothers me, but if I could at least know more specifically what does and doesn't bother me, that would help.

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