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First time visit, what should I expect?

Posted by randi @randi013, May 28 12:58pm

Hello! I’m visiting the clinic in Jacksonville FL for the first time ever at their EDS center soon and I don’t know what to expect for testing. I’m staying overnight because there’s a lot of tests to run. Having the uncertainty sit in my mind makes me super anxious so I thought I’d ask yall 🙂

Interested in more discussions like this? Go to the Visiting Mayo Clinic Support Group.

Mentor
Laurie, Volunteer Mentor | @roch | May 28 2:41pm

@randi013
Welcome to Mayo Connect. I see on your profile, you’re a service dog handler, how wonderful.

Have you created a Mayo Portal sign on ? It will be very helpful to know what has been scheduled and any prep that is required before a tests. If additional testing or appointments are needed, the information will be updated.

While we wait for fellow patients to share their experiences about Mayo EDS Clinic in Jacksonville, you might appreciate these related blogs and discussions:
- EDS Clinic Updates, EDS Awareness
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/eds-clinic-updates-eds-awareness/

- The EDS Clinic at Mayo Clinic Florida
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/the-eds-clinic-at-mayo-clinic-florida/

@katemschultz posted this informative message when she was preparing for her first EDS visit to Mayo in Rochester
– What to expect at Mayo Clinic, Rochester https://connect.mayoclinic.org/discussion/what-to-expect-at-rochester

@jthigpen writes about their experience at the EDS Clinic at Mayo Clinic in Florida here: https://connect.mayoclinic.org/comment/320392/

REPLY
1 reply
randi | @randi013 | May 28 10:00pm
In reply to @roch "@randi013 Welcome to Mayo Connect. I see on your profile, you’re a service dog handler, how..." + (show)
@roch

@randi013
Welcome to Mayo Connect. I see on your profile, you’re a service dog handler, how wonderful.

Have you created a Mayo Portal sign on ? It will be very helpful to know what has been scheduled and any prep that is required before a tests. If additional testing or appointments are needed, the information will be updated.

While we wait for fellow patients to share their experiences about Mayo EDS Clinic in Jacksonville, you might appreciate these related blogs and discussions:
- EDS Clinic Updates, EDS Awareness
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/eds-clinic-updates-eds-awareness/

- The EDS Clinic at Mayo Clinic Florida
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/the-eds-clinic-at-mayo-clinic-florida/

@katemschultz posted this informative message when she was preparing for her first EDS visit to Mayo in Rochester
– What to expect at Mayo Clinic, Rochester https://connect.mayoclinic.org/discussion/what-to-expect-at-rochester

@jthigpen writes about their experience at the EDS Clinic at Mayo Clinic in Florida here: https://connect.mayoclinic.org/comment/320392/

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Yes, I have made a patient portal account. Since reading this, I have checked and I got notifications for testing the first day I’m there, but since I’m staying overnight for a second day of testing, I thought there would be notifications for those tests too. Guess I’ll just have to wait and see haha

Thank you so much for linking the other blogposts too! ❤️

REPLY
kkohl | @kkohl | May 29 10:49am

Hi - my ascending aortic aneurysm repair is in a week at the University of Washington Med Center in Seattle. We currently live in Seattle but plan to sell the Seattle home and move to our new home in Arizona. I'll recuperate and rehab here then off to PHX in September. I want to transfer my post-surgical treatment to Mayo Phoenix. I want to start the process this week—suggestions for making this a smooth and safe transition. I'm going to need a cardiologist right out of the box.

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2 replies
Mentor
Laurie, Volunteer Mentor | @roch | May 29 4:24pm
In reply to @kkohl "Hi - my ascending aortic aneurysm repair is in a week at the University of Washington..." + (show)
@kkohl

Hi - my ascending aortic aneurysm repair is in a week at the University of Washington Med Center in Seattle. We currently live in Seattle but plan to sell the Seattle home and move to our new home in Arizona. I'll recuperate and rehab here then off to PHX in September. I want to transfer my post-surgical treatment to Mayo Phoenix. I want to start the process this week—suggestions for making this a smooth and safe transition. I'm going to need a cardiologist right out of the box.

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@kkohl

I would start by calling the appointment desk at Mayo AZ , that is usual starting point for new patients. One of first questions you will be asked about is insurance, so have your insurance cards ready. Every Mayo locations take different insurance, so that is first thing to check out.

Phoenix/Scottsdale, Arizona
Central Appointment Office
480-301-8484
8 a.m. to 5 p.m. Mountain time, Monday through Friday

You may also ask your current surgeon to do a referral to AZ.
https://www.mayoclinic.org/medical-professionals/provider-relations/refer-patient

Are you going to be looking for a primary provider in addition to specialists? If a primary provider is not available, then ask about specialist in departments you need.

REPLY
Mentor
Laurie, Volunteer Mentor | @roch | 5 days ago
In reply to @kkohl "Hi - my ascending aortic aneurysm repair is in a week at the University of Washington..." + (show)
@kkohl

Hi - my ascending aortic aneurysm repair is in a week at the University of Washington Med Center in Seattle. We currently live in Seattle but plan to sell the Seattle home and move to our new home in Arizona. I'll recuperate and rehab here then off to PHX in September. I want to transfer my post-surgical treatment to Mayo Phoenix. I want to start the process this week—suggestions for making this a smooth and safe transition. I'm going to need a cardiologist right out of the box.

Jump to this post

@kkohl

Just checking in to see how your aneurysm repair went . Did you have a chance to contact Mayo AZ about follow up care?

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