First Time and Terrified

Posted by leahknit @leahknit, Oct 22, 2017

Hi my name is Leah and I will be making the journey for the 1st time in a few weeks. I have been battling a pain in my brain since July and have no feeling in my hand and feet as well as many other painful issues. I have spent many weeks in and out of hospital and been diagnosed many times then told they were wrong. I am in so much pain every min of everyday if I could I would live in a hospital for pain management. I am terrified of coming from NY and once again being told they can’t fix me, Not to mention just the thought of travel. So I don’t know what I’m looking for in this post but if there are any miracle stories out there please let me know. I need my life back please.

Liked by dandl48, loli, vsinn2000

@waterboy

One of the really unique and interesting things about the downtown campus is the “subway” under the streets. If it is 30 below zero, or over 100 you can move around to different buildings, shops, and even hotels you can be comfortable walking, or being pushed. The Clinic is 18 stories and cover most of a city block. For the size of the city…. 114,000 Mayo employs about 33,000….. they do almost 1300 blood draws a day.

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@jamienolson – Jamie, I often wonder if the locals take a lot of these amazing Mayo wonders for granted. For us out-of-towners, it is difficult to describe to our hometown friends! Mayo has to be experienced to be believed! Rosemary

Liked by Jamie Olson

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@leahknit, I want you to know that I am thinking of you. So try to visualize this message as a “Thinking of You Card”. I hope that you are finding some answers to your health concerns.
Rosemary

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Leah,
I made my first trip just this week. It’s overwhelming if you look online but when you get there it’s not so bad. The signs and directions are great. Everyone we dealt with was very helpful and polite. I have a horrible phobia for new places and i could even follow the signs. Believe me, you’ll be pleasantly suprised. The shuttle drops you off at the entrance right by the elevator and the information desk. We drove but walked through that area. They were very good about announcing all the different shuttles, making sure everyone had the right one. I hope you find your answers! I’m glad you keep looking for a solution, it’s not the easiest choice but don’t give up!
Best of luck,
Vicky

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@vsinn2000

Leah,
I made my first trip just this week. It’s overwhelming if you look online but when you get there it’s not so bad. The signs and directions are great. Everyone we dealt with was very helpful and polite. I have a horrible phobia for new places and i could even follow the signs. Believe me, you’ll be pleasantly suprised. The shuttle drops you off at the entrance right by the elevator and the information desk. We drove but walked through that area. They were very good about announcing all the different shuttles, making sure everyone had the right one. I hope you find your answers! I’m glad you keep looking for a solution, it’s not the easiest choice but don’t give up!
Best of luck,
Vicky

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Vicky, did you use the Concierge Services while you were at Mayo Clinic? Might be useful if you have a future visit.

Mayo Clinic in Rochester has Concierge Services to help make your trip go smoothly. They provide information about travel, lodging, Mayo Clinic and community resources to plan your visit to make your visit smooth and less stressful!
And it’s free.

Hours: Monday-Friday, 8 a.m.-6 p.m. CST by phone, 8 a.m.-5 p.m. in person
Location: Mayo Building, Lobby level, International Center
Email: concierge@mayo.edu
Phone: 507-538-8438

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Thanks Colleen! Had some really great conversations with cancer center and hope lodge today. I’ll put them on my list for tomorrow! Have a great evening!
Vicky

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I’m so sorry you are hurting so much.I can only suggest,have you seen a good chiropractor?It may be just a pinch nerve in you neck of spine? I’ll do some research to see if I find anything.I am a retired nurse working in all medical fields of hospital,nursing homes,home health ,med. ins.exams and other areas. Been retired after 40 yrs.

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How are you doing Leah, and how has your experience with Mayo been?

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I do hope sincerely that you find help. Since I don’t have any help I will not waste any more of your time.

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All I feel is for you to love yourself. You did not ask to be in this condition and lots of know that all of your symptoms are facts. Please surround yourself with supportive people, forget the others for now. Hugs to you, Agent Darien

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@pkayh

I do hope sincerely that you find help. Since I don’t have any help I will not waste any more of your time.

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@pkayh, Your words of kindness are never a waste of time. Thank you for offering your sincere support.
I’m sending you a virtual hug.
Rosemary

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