What were your first signs of endometrial cancer?

Posted by Helen, Volunteer Mentor @naturegirl5, Jun 21, 2022

What symptoms did you have that led you to your physician before you received a diagnosis of endometrial cancer?

I had entered menopause more than a decade ago so menstruation was done. I discovered vaginal blood one morning. When it happened again a few days later I realized that something was going on but I didn't suspect cancer. I just knew this wasn't normal. I made an appointment with a gynecologist. Within a few weeks I began having cramps like I used to have when I first started my period as an adolescent. By then I was already under the care of the gynecologist who did a D&C and that's when the endometrial cancer was diagnosed.

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Yes. I had six rounds of chemo in conjunction with immunotherapy. After chemotherapy completed, immunotherapy continued for a total of twelve months. The plan was to have immunotherapy for twenty four months, but it had to be discontinued because of adverse side effects. My last infusion was on 12/2/24. My recent CT did not show recurrence.

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Profile picture for jc100 @jc100

I was more than fifteen years post menopausal, and had very light spotting started on a Friday. I called my gynecologist on Monday and saw her on Tuesday. The physical and ultrasound examinations were normal. She did biopsy and one week later abnormal results came back. She called immediately and also called the surgeon’s office, and I saw the surgeon that afternoon. A total hysterectomy was scheduled within a month. The pathology report came back ten days later after the surgery and I was diagnosed with stage IIIb endometrial cancer. I recommend see a gynecologist right away when having post menopausal spotting or bleeding.

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@jc100 Thank you for sharing your symptoms, diagnosis, and treatment. Your gynecologist acted quickly which is so reassuring. Did you have any other treatments after surgery?

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I was more than fifteen years post menopausal, and had very light spotting started on a Friday. I called my gynecologist on Monday and saw her on Tuesday. The physical and ultrasound examinations were normal. She did biopsy and one week later abnormal results came back. She called immediately and also called the surgeon’s office, and I saw the surgeon that afternoon. A total hysterectomy was scheduled within a month. The pathology report came back ten days later after the surgery and I was diagnosed with stage IIIb endometrial cancer. I recommend see a gynecologist right away when having post menopausal spotting or bleeding.

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I had massive abnormal bleeding. by the time my gyno could see me i had to be hospitalized due to severe anemia for a blood transfusion.

while in the hospital all the doctors thought it was most likely cancer but they could say which one (cervic, ovary, endometrial).

they took a uterine biopsy and sent me for a CT scan - both came back with endometrial cancer and i had a radical hysterectomy.

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Profile picture for jgoldstein @jgoldstein

How did you know - signs and symptoms- that you had omentum cancer?

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Extreme tiredness and all my tests came back clear so as a last resort a consultant send me for a CT scan, and then a laparoscopy confirmed it

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Profile picture for kforrest @kforrest

thank you. i have been diagnosed with omentum cancer. it's still sinking in.

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Hi I was diagnosed with cancer of the omentum in November 2023.. I had 6 sessions of chemotherapy and I have regular scans and checkups. Normally I Google everything but I haven’t ever been brave enough to Google it..

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Profile picture for jgoldstein @jgoldstein

How did you know - signs and symptoms- that you had omentum cancer?

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postmenopausal bleeding

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Profile picture for Colleen Young, Connect Director @colleenyoung

@kforrest, I'm sorry to hear of your recent diagnosis. Do you know if it is primary omentum cancer, meaning cancer started in the omentum (very rare)? Or is the cancer found in the omentum spread from a primary elsewhere, like the ovaries or stomach?

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spread from uterus i think was said.

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Profile picture for kforrest @kforrest

thank you. i have been diagnosed with omentum cancer. it's still sinking in.

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@kforrest, I'm sorry to hear of your recent diagnosis. Do you know if it is primary omentum cancer, meaning cancer started in the omentum (very rare)? Or is the cancer found in the omentum spread from a primary elsewhere, like the ovaries or stomach?

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Profile picture for crowleykid @crowleykid

I was in my garden and I thought I sat in a puddle because we had recently had rain. When I discovered it was blood, not water, I googled "post menopausal bleeding" and called the doctor the next day. He tried to grab tissue in his office & it was just too painful. D&C surgery is how they found the cancer and all he said after the surgery was "there was a lot of blood". So began the journey in July 2021. I hope this helps.

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thank you. i have been diagnosed with omentum cancer. it's still sinking in.

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