Want to talk to others with fibromyalgia: What symptoms do you have?

Posted by ChelleR @cheller, Apr 23, 2012

hello everyone i'm new at this but was wanting to talk to other people about fibromyalgia and the symptoms that other people have

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Profile picture for crewmom @crewmom

Hi! I am new to this platform, too. Was diagnosed in my 20s with Polymyosistis which has been in remission for many years, but in the past 3 years I have had terrible muscle weakness, pain, fatigue and burning/tingling in hands, feet, legs. Was diagnosed this summer with acute stage 4 Fibromyalgia and early stage neuropathy. May I ask what meds any of you are taking? My Hopkins rheumatologist wants to try Savella, but my insurance won't approve until we try a different class of meds. If anyone on here has taken Savella for their Fibro and neuropathy symptoms I would like to hear about your side effects, and any success with it. We are hoping to get approval soon.

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@crewmom I take gabapentin and some days I take a prescription NSAID. I also add Tylenol in the evening. So far the 600 mg Gabapentin 3 times daily works well. Best of luck!

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