Finally diagnosed with fibromyalgia after 5 years of pain
Dear fellow sufferers of chronic pain,
I just want to share my story. I live in the UK and thankfully have use of the NHS. I have had wide spread pain on and off for 5 years, ( off probably because of my pain killers masking my pain). I started in gastroenterology and had colonoscopy and endoscopy because of worrying symptoms of pain bloating diarrhea etc. Eventually after being referred backwards and forwards from consultant/ GP care I was found to have mild GORD and weak esophagul motility. So went on PPI tablets. Couldn't take them long term so stopped and pain became alot worse. Then later was under breast clinic for LCIS, big lump removed but had terrible reaction to general anesthetic. On and off pain depending on whether I was taking tablets or not. Tried everything co codamol worked for my different sorts of aches and pains. Not allowed long term so pain again. It's like going around in circles, manageable pain but always there with times of increased not so manageable pain stabbing, aching, bruising type throbbing etc and stiffness as if all my joints need oiling. Still no answer. As time has passed and going through stages of going cold turkey and stopping pills and starting on them again (because I am very sensitive and always have side effects ) things came to a head when I had 2 bad falls, I basically lost my balance each time. From my 2 hospital stays it turns out I have Radiculopathy with a slipped disc and neurologist wondered why my pain was much more than expected for a moderately slipped disc. This was a piece of the puzzle. Looking back the pain level was always turned up in me as during one endoscopy with only mild sedation I nearly jumped off the table in agony. Thankfully my gastroenterologist referred me to the pain clinic as my symptoms couldn't be explained. As I am writing this I am exhausted after 6 hours of teaching and my brain is really fuzzy. Sometimes I can't even say words correctly and stutter. To get to the point after making everyone fall asleep. I met a consultant in the pain clinic who said before I even got through the door that he had read my medical records ( very long list!) and said I had ticked every single box to be diagnosed with fibromyalgia.
Finally an answer!. 5 years of thinking is it perimenopause?, is it in my mind and not real?. Sleeping for England and still knackered and feeling like a zombie with pains in different parts of my body with no real pattern just that it's always there now has a name.
Please don't give up if your symptoms are like fibromyalgia and you haven't been diagnosed yet as it really is worth going around the houses and saying there is something wrong even if hospital tests are negative. It is real and doctors are now taking note of this terrible chronic condition and with a name I am going to try my hardest to stay on top of my symptoms and get on with my life as best I can. Good luck everyone, knowledge is power.x
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