1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

lioness | @lioness | Jan 19, 2018
In reply to @jlfisher56 "I used to use Thermacare pain patches for the neck and low back in 2003 and..." + (show)
@jlfisher56

I used to use Thermacare pain patches for the neck and low back in 2003 and worker com paid for them. I decreased my pain medication. When I started with skin breakdown, no longer could I use them. Now I use Teracin pain patches that are much smaller (menthol---cool, lidocaine---numb, and capsaicin but doesn't burn), and do have to change skin sites because my skin will start to become sensitive with continued application. Thermacare is heat and now the cool works better for my nerve pain also. Best of luck!

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Where do you by them?

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capefibro | @capefibro | Jan 19, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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Jeez, we all have the same symptoms...breath taking pain and developing cognitive neuro stuff after 30 years. My hat is off to you still working. I had to retire at 64 five years ago.

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lioness | @lioness | Jan 19, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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Don't blame you in the past I've tried Savella,Cimbalta and Lyrica they didn't help and had side effects ,that's why I rely on chiropractor,ice,hot water and take Magnesium we get it through food of course but research says we need more then normal people It is a trial @error we have to do,what works for ,won't for all.

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lioness | @lioness | Jan 19, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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In the past I have had Neuro in hands ,arms ,feet but I swear ladies the magnesium has gotten rid of it ,When I was out of it the symptoms returned ,so I take it everyday ,look up on he National fibromyalgia site I hate to hear about all his pain.Good luck and God bless us all.

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kellye5 | @kellye5 | Jan 19, 2018

I wish in many ways I could retire...disability is on the table. I adore my job but I also have a child who was just diagnosed with an extremely rare digestive disease so we are headed up to MN to start treating him for a disease with now cure or no known real treatment. You can find me with Collagenous Gastritis group as well. I do not feel sorry myself I feel immense concern.

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2 replies
kellye5 | @kellye5 | Jan 19, 2018
In reply to @jlfisher56 "I used to use Thermacare pain patches for the neck and low back in 2003 and..." + (show)
@jlfisher56

I used to use Thermacare pain patches for the neck and low back in 2003 and worker com paid for them. I decreased my pain medication. When I started with skin breakdown, no longer could I use them. Now I use Teracin pain patches that are much smaller (menthol---cool, lidocaine---numb, and capsaicin but doesn't burn), and do have to change skin sites because my skin will start to become sensitive with continued application. Thermacare is heat and now the cool works better for my nerve pain also. Best of luck!

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Where are these purchased?

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lioness | @lioness | Jan 19, 2018
In reply to @parus "@clownscrytoo I am in one of my lows and lack energy to even think about doing..." + (show)
@parus

@clownscrytoo I am in one of my lows and lack energy to even think about doing something. Depression engulfs me when the pain gets worse. Loneliness takes any energy that may have hidden a way. Is what it is. In that dark chasm of not wanting to try. Any of the meds for fibro mess terribly with my mind and I become suicidal on most of them. The Cannabis thing is illegal where I reside and dubious about this as a solution. With the quirky reactions I have to medications I shudder at what this may do. Just because I can no longer work does not mean I am happy w/o a quality of life. I find some quality at times. Excuse please, head not thinking positive at this time.

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So sorry to hear this was it citrate?that will cause diarrea the ones that don't are gluconate,Malate and some others there are alot of different compounds,for lack of better word, of magnesium.Oxide is another but it it helped you otherwise ,look into research of the different kinds of you haven't done so.

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wandamiller | @wandamiller | Jan 19, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

Jump to this post

I agree 100%. I take it for leg cramps. Works like a charm.

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jenapower | @jenapower | Jan 19, 2018

I’m not sure what you’re asking to purchase because you don’t state it, if it’s the patches that are being talked about I don’t know. If you’re talking about the Theracane, I bought it at a medical supply store that’s in my doctors office building. I have also seen them online, I believe at Amazon. If you Google them you’ll find them. If you want it right away go to a medical supply store. I’d call first to make sure they have it.

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1 reply
jenapower | @jenapower | Jan 19, 2018

If you’re talking about the Theracane, I got it at a medical supply store. I have also seen them online in places like Amazon. There are probably other places online also.

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