Fibrillary glomerulonephritis

Posted by jennifer208 @jennifer208, Jan 22, 2020

I was just diagnosed with fibrillary glomerulonephritis. I have an appointment the 27 at the mayo clinic in Scottsdale. Has anyone ever been diagnosed with this. Would like info. It says stage 3 kidney disease on my paperwork

@jennifer208

I guess what I'm wondering is.. is there really no cure. And the doctor at the Mayo clinic in Scottsdale actually recommended I get the bone marrow biopsy. My nephrologist here said there's no need because the blood stains they did or whatever they are called were good. But I told her could we just rule it out. So waiting to hear if my insurance will help cover. Stressed. Also I'm getting laid off. So then I lose my insurance. Don't I qualify for some sort of government aid? I really don't know what to do.

Jump to this post

@jennifer208 Dang, that is a lot of stress to deal with, which you definitely do not need right now, right? Not knowing your age range, nor state, have you checked in to insurance coverage for your state? Be honest with your doctors. If you are being laid off, is your company offering you continuation coverage on their insurance? Called COBRA, you would be responsible for for the whole premium, usually for no more than 180 days, so i would check with the HR Dept.
Ginger

REPLY

I am 44and I Live in Idaho. Actually it's a self pay insurance not through my job. I just won't be able to keep it being on unemployment

REPLY
@jennifer208

I am 44and I Live in Idaho. Actually it's a self pay insurance not through my job. I just won't be able to keep it being on unemployment

Jump to this post

REPLY
@jennifer208

I am 44and I Live in Idaho. Actually it's a self pay insurance not through my job. I just won't be able to keep it being on unemployment

Jump to this post

@jennifer208 would you qualify for insurance through the ACA? My daughter used to be a freelancer and was insured that way.
JK

REPLY

Just wanted to check in. My consult appointment is Friday with the hematologist. I will let you all know when the bone marrow biopsy is.

REPLY
@jennifer208

Just wanted to check in. My consult appointment is Friday with the hematologist. I will let you all know when the bone marrow biopsy is.

Jump to this post

@jennifer208 You have several people from here sitting in your corner, rooting you on! Let us know how else we can support you?
Ginger

REPLY
@jennifer208

Just wanted to check in. My consult appointment is Friday with the hematologist. I will let you all know when the bone marrow biopsy is.

Jump to this post

@jennifer208, I want to drop in for a short virtual visit because it has been a while since we've heard from you. How did your consult go with the hematologist? What have the doctors suggested as your next step in developing a possible care plan for you?

REPLY
@rosemarya

@jennifer208, I want to drop in for a short virtual visit because it has been a while since we've heard from you. How did your consult go with the hematologist? What have the doctors suggested as your next step in developing a possible care plan for you?

Jump to this post

I got my bone marrow biopsy today. Will know in about a week

REPLY
@jennifer208

I got my bone marrow biopsy today. Will know in about a week

Jump to this post

@jennifer208, I am thinking about you today. And I hope that this is the beginning of finding answers and a treatment plan.

REPLY
@jennifer208

I got my bone marrow biopsy today. Will know in about a week

Jump to this post

@jennifer208 Gently distract yourself while waiting. It can be so hard, can't it? What do you have in your plans for this week of waiting? Anything interesting or fun?
Ginger

REPLY
@rosemarya

@jennifer208, I am thinking about you today. And I hope that this is the beginning of finding answers and a treatment plan.

Jump to this post

Thank you.

REPLY
Please sign in or register to post a reply.