Feeling Desperate about Cough and Doctor
Sorry this is so long, but just writing it all out has been therapeutic.
I had a chronic recalcitrant cough for decades which no one could diagnose even after playing the Specialist roulette game several times over the past 5 years. ( ENT, GI, Asthma/Allergy, at one point they said it was "neurogenic" and threw up their hands -Pulmonology said I was great because the X-rays & breathing tests came back beyond healthy and so no one would do any CT scans!) The one thing that helped for 18 months was a Botox shot done by ENT above my vocal chords for the " reactive airway". MAGIC! But it did fade and we have not been able to replicate it. It was the ENT who spotted the stuff coming UP from my lungs while I was scoped for his procedure and he said to go back and demand a closer look by pulmonary.
So guess what, did they do a fresh CT? No! The pulmo got hold of an OLD chest CT from 2020 when I fell and bruised some ribs and suddenly decided I have BE.
She ripped my codeine contract (obtained through my GP exactly to control night time coughing which no one could diagnose) out of my hands. Enter true misery. I do understand that I should be happy to get the stuff out of my lungs, but I do that all day anyway!
At this point I nebulize a 3% saline, huff cough and wind up drained, exhausted and teary and oh so pathetic. I do it daily, sometimes twice when tight & can't cough up what I know is trying to choke me. Bedtime is a misery, I sleep on an incline, but even if I neb at bedtime I am awake every hour spitting into hankies between cough drops. UNLESS I go against all recommendations and sneak a few Canadian 222's with 8mg codeine.
Just started on 250 mg of Azithromycin 3X a week…but no promises that it will affect the Continual Cough. If I tolerate it for 2 months we'll up it to 500mg. My pulmo doc also refuses to do a repeat CT, no matter how many times I ask.
What I am struggling with right now is that I cannot get more than an hour of uninterrupted sleep at a time, night after night, unless I break the cardinal rule and suppress the cough somehow. My justification is that I am also hurking up a 1/4 cup of thick white frothy stuff all day anyway.
I feel desperate, depressed and exhausted. ANy words of wisdom would be so appreciated.