Feeling at my wits end with Chronic Pain and Fibromyalgia

Posted by Jen, Volunteer Mentor @sandytoes14, Mon, Aug 19 2:56pm

Usually I am not one to share much of my personal story but here goes…I have what is called moderate to severe degenerative disc disease, arthritis of the spine C3-C7 and lumbar spine, and Fibromyalgia. In the 20 years Ive had pain, I"ve been though many treatments including PT, tens unit, bio feedback,injections, nerve ablations, you name it. I'm prescribed Cymbalta 60 mg for Fibro and anxiety as well as 225 mg of Lyrica. I have been on and off various painkillers too. I'm currently on a long acting oxycodone of 13.5 mg and once a day one 15 mg of IR oxycodone. This has been my regime for a few months now as I switched from 15 mg IR oxycodone. Now for those who are worried about me ODing…I understand. I actually hype-vigilant about my meds. (And I have my hubby and son who watch) Years ago I was on 15 mg Fentanyl patch for 10 months and came off it in one month with no side effects.
Right now I'm really struggling with this rotten pain. I have no appetite, either can't sleep or nap during the day.

@edda

I really liked your comments about pain. I myself never experienced real bad pain, even though I had 4 children, 2 c-sectioned, in 8 years and some backpack, but the real pain came
now in the last 10 years. Now I know, what it does to you. I withdraw from social functions, have no pleasure in life, and try to get off opioids, because they do help, but I do not like the dependency, which comes with it. But the pain is there almost 24 hours, and I have become more housebound and now even in bed more hours. I have arthritis in my spine, headaches ,
had an AVM operated with open brain surgery, and other bone problems.
Tried to cut down on the Opioids, but it is hard, after several years. I am 73 yrs old, and thought my hubby and I had some good years left.
Now the depression has started. Any suggestions?

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@edda Good morning. I just read your post. I empathize with you and also relate. I think a vicious cycle is occurring in my life too. I am in pain and have difficulty getting around, because I really don't know, but I do. This makes me avoid activities and even family gathering. In turn the depression comes in which stimulates our pain button and here we are. I also take percocet and get frightened. I also was an addiction counselor for 28 years and certainly know the perils of opiate and of course other drug use. At the same time I am tired of pain and the percocet helps so much, except for the foot pain. They only take the edge off the foot. I have osteoarthritis and several back issues and when that attacks me they wil do the job of relieving the pain. I take them as prescribed and so be it I think a suggestion for both of us right now is to get away from the depression. I take an antidepressant (obviously not working well), but in spite of pain I need to get back into water therapy, which is so available to me. I am also going back into grief counseling (lost my husband 18 months ago) and TRY to socialize a bit. Al sounds good, right. Now to do it. If the opiods help to down size your pain and make it a little easier to get about and you are taking them as directed I would not put all my focus on being a drug addict. Many drugs that people abuse are the same ones that keep people walking. God bless

Liked by rwinney

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@edda Hi I also am in a lot of pain with fibro,back fractures and other issues . My Dr. told me to take Vicodin as prescribed that if I do this I wont become addicted . Its the people who don't follow the orders and take more that are the addicts. I was on Vicodin along time them he took me of it as I was taken less then prescribed. This is when he switched me to Tramadol which I had been taking also and I only take one now. Yes don't be afraid to take the pain medicine as long as you take according to directions.

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@jmweissler

Hi. I am a 62-year-old male living on Long Island, NY. I suffered a fracture & spondylolisthesis @ L5/S1 in 1998 & had fusion in 1999. After the surgery the pain never went away & at times was worse. I started pain management in 2001. They gave me different meds that didn't work until I was on the maximum dose of both Oxycontin & Oxycodone. When that wasn't helping, they added Fentanyl patches until I was maxed out on that. Lived like that until 2008. In 2006 I had a spinal cord stimulator (SCS) implanted. I lived this way until 2008 when my family decided I couldn't live like this anymore. Went to The Hospital for Special Surgery (HSS) in June 2008. They did an exploratory. They discovered that the fusion failed, even though numerous surgeons told me all was fine. My exploratory turned into a 6-hour PLIF. Ten days later I had ALIF. They also removed the SCS. It was discovered that I suffer from a severe case of osteoporosis (-3.2). Rehab was tough. Felt better but not great. Was still on all the meds. I retired from my job on disability as I could no longer work. In April 2011, I started having severe pain. Back to HSS. A MRI was done and the diagnosis was a fracture @ L4/L5. Back in the OR & another fusion. In November 2011, the pain was worse. It was discovered that the fusion failed so I had a revision. Fifteen days later I experienced the worst pain so far. It was a cyst @ L4/L5. Emergency surgery. In January 2013, it was discovered the fusion @ L4/L5 failed again. Another revision. Did relatively well but still lots of pain until November 2014 when L3/L4 went. Had a good 2015 but in February 2016 L1/L2/L3 went. They fused T12 to L3. In December 2016, guess what, L1/L2 failed and another revision. Moving on to September 2018 when C3 to C7 went. Had 4 level Anterior Cervical Discectomy (ACDF). Please don't question my surgeon's abilities as he is one of the top spinal surgeons dealing with diseased spines and IT IS HSS! I have had 2nd, 3rd, 4th and even 5th opinions from some of the top spine surgeons in the US including The Mayo Clinic. This brings me to the present day. I have been having in pain in my lower lumbar and hips for months and it has escalated to the point I can’t walk my dog. Had an X ray taken and sent to my doc. He said my Sacroiliac (SI) Joints and right hip are completely shot. I did an Epidural Steroid Injection (ESI) & then RF nerve ablation. Followed by (after the proper waiting time) a series of 3 more ESI’s over 6 weeks as I need a week in between to go back on my blood thinners. The shots did not help at all. help. My surgeon has asked me to come in for a chat this week. We all know that when a surgeon calls you in, he’s gonna tell you that you need surgery! In addition, I have had 2 heart attacks and a mini stroke which is why I need to be able to walk every day. I have a Service Dog (yes, a real 1) to help pick up the numerous things I drop (due to cervical fractures), retrieve things and the best part, he keeps me smiling. As this disease eats my bones, I will eventually need a bigger dog to help with my balance & then later down the road, to pull me in a wheelchair.
My advice to all in pain:
1) Pain is here forever
2) Opioids will rarely help the pain
3) Go to the best surgeon even if you need to travel
4) Get a 2nd & 3rd opinion as this surgery will affect your life
5) Do any and everything possible not to have a fusion unless it is a must
6) If nothing helps, try marijuana (in legal states) as I have found that this is my best pain relief
7) Most of all, find happiness in anything.
Thanks for reading. I feel better already.
I am reading lots of posts and can’t believe how many people are hurting. Thanks Mayo for making it possible. If anyone has had SI Joint surgery, please let me know about the surgery, postop & if it helped. Thanks. 😊

PS – I got off all of meds at the end 2017 when I fell & broke my nose.

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@jmweissler, Good morning. I just reread your post and want to thank you for including the medical document which requires a second or even third reading. When I concentrated on the elements of your advice, I felt that this was a "cut to the chase", "net it out" approach to treatment solutions. You gave kudos to medical cannabis. I have chosen not to use pain medications and only use medical cannabis. My pain is manageable most of the time and my zest for finding out what tomorrow will bring is present most of the time.

Would you be comfortable sharing your medical cannabis journey of discovery, experimentation, and acceptance? That would be helpful to many members who are curious or just plain ready to try it and are seeking information. It is not like just picking up a new RX.

My other inquiry is about your exercise program. There is a great video on the internet with a dog and its owner doing the same poses. Is your body able to handle very gentle yoga stretches? Do you use props of any kind? Do you check your spine alignment?

May you grab some joy today. Chris

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Hi Jen, I so understand. I have Adesive Arachnoiditis lumbar spine, scar tissue stuck to nerves, leg pain, neuropathy rt. toes, Flat Back syndrome, spine does not curve anymore do to a horrible Laminectomy 2008. I can't leave the house except to drs. Due to my flat back sitting is so painful. Life has left me.

I was taking hydromorphone since 2015. I'm immuned now. P. M. DR. is making me feel it's my fault that the medication doesn't work anymore. I left a message asking dr. if I could go back to the Hydromorphone but a very high dose? I never any side effects. I had a little surgery Pelvic/ NO Pain from it. on 9/9 -9/10 hospital was so concerned about my pain they gave me a morphine drip. For long ride home I was given oxycodone 5mg. I guess morphine drip was still in my system it was stopped day I was leaving. Ride home noted. P.M. Oxymorphone 10 mg. NOTHING!!!!!!!!!!!!!!!!! His office is closed on fri. I called left a message, new med not work and please get me out of the house, socialize, get dressed. I feel for you so much! Have you ever thought of a Pain Pump? I have it, it helped me so much until I became immuned to the Hydromorpohne. I also have a difficult time eating. I guess it's the pain, depression. For me, mentally like, DOOMED.

It's just my husband and I. My four legged loving, caring children.He is so tired and stressed out as I. Standing! Why, Why,In my experience is there not one person in the medical community who truly cares? I called 2 good practices in Neurology gave my diag. never called back. they never do! I don't call back anymore.

I wanted to reply to you Jen I guess I didn't?

four walls closing in more and more

Sincerely

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@artscaping

@jmweissler, Good morning. I just reread your post and want to thank you for including the medical document which requires a second or even third reading. When I concentrated on the elements of your advice, I felt that this was a "cut to the chase", "net it out" approach to treatment solutions. You gave kudos to medical cannabis. I have chosen not to use pain medications and only use medical cannabis. My pain is manageable most of the time and my zest for finding out what tomorrow will bring is present most of the time.

Would you be comfortable sharing your medical cannabis journey of discovery, experimentation, and acceptance? That would be helpful to many members who are curious or just plain ready to try it and are seeking information. It is not like just picking up a new RX.

My other inquiry is about your exercise program. There is a great video on the internet with a dog and its owner doing the same poses. Is your body able to handle very gentle yoga stretches? Do you use props of any kind? Do you check your spine alignment?

May you grab some joy today. Chris

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Yes please, I too would like to hear your cannibus journey @jmweissler. Chris, I'm really racking my brain here. Hydrocodone does not help my pain enough and I've been on an opioid for 2 years. I'm opening the door to more supplements being added, keep my body moving as best I can, find the joy in each day as best I can, am going to try PEA cream (I think). I'm dedicating to regenerating, if possible, my nerves instead of masking pain. However, it will be a long while at this rate before I drop pain pills as they give me benefit and some relief, just not enough. My IV lidocaine infusions are simply not working on my legs as I hoped. They are debilitating. Heat and a tight wrap works best. My doseage of lidocaine will be upped Monday again then only one more increase before I'm maxed out. Met with neurologist this week to discuss overall game plan. Im incredibly frustrated as my pain is relentless and persistent. I was a very active and involved woman and over the past 3 years my life has sloooowed down (via multiple diagnosis) and now is trying its best to come to a screaching halt. I heed all of the advice from everyone on this forum but at the end of the day it's about what my body allows and doesn't allow me to do. Another big component for me personally are finances. I have been on disability for 2 years and am going on Medicare soon. I need to find proper supplemental isurance to cover the possibility of future treatments that are in my neurologist's wheel house. Including IVIG and plasmapherisis. Truth is I don't know if I'm coming or going. Always lived week to week before my disability now we are really drowning. Not looking for sympathy, I only bring this up because so many of the pain treatments people suggest are out of pocket. It's tough when the pocket is empty. It's a shame that it's cheaper for me to spend $4 per month through my insurance on hydro, and put opiods in my system, verses a natural product that insurance will not cover. As far as cannibus…I DO NOT wish to go through life high however, I DO want pain relief. Ughh, frustrating.

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Having chronic pain and finding the right tools to combat the pain, never mind finding a doctor who can and will work with us–this is very hard work, takes much trial and error, and keeping current with anything new on the scene. For me the formula includes very light yoga stretches, CBD gel pills, tylenol, and 120 mg. of Cymbalta. Also as clean a diet as possible as I experience more pain and inflammation from food additives. Weekly acupuncture at a PACO community clinic have saved my life, twice even three times a week if I am in a flare up. (Most major cities have 1 or 2 such clinics which offer low cost treatments and also do exchanges of free treatment for volunteer hours spent at the reception desk. Here in Tucson, the treatments are $15!) I have been on opiods, have been through all the pain treatment centers expensive options, and none of that helped. After years of searching for "help," today I accept my limitations, and I have developed a new attitude, which has probably been the biggest breakthrough. Extremes of temperature, rapidly changing barometer, kick my butt, so here in Tucson I have finally this summer accepted that I cannot go outside after 8:00 a.m., and certainly cannot drive. I have been devoting myself to some on line research and writing that I had always told myself I would do in retirement, and have chosen to enjoy that. I have finally ( I think!) finished grieving the loss of a strong healthy body that took me dancing, hiking, backpacking, jogging, playing softball, trekking in Nepal, and so forth. That grief and it's companion denial kept me in a spin of trying new treatments that I wanted to believe would give me back my previous vitality. Those years are over. They were good years. I believe my health struggles are evidence that like many women, I am a "sensitive", a person who does feel empathy deeply, and also is a canary in the coal mine, one who is the first to get sick because of social and environmental toxins that others seem to handle better for longer before they "get sick." I am no longer embarrassed or ashamed about my limitations: rather, I choose to focus on what I can still do, share honestly with family and friends about my condition and my journey, and in general have a much better quality of life right now than I have had in many years. It is a long journey, and each of us has their own story, and both good days and bad, no matter how much progress we make. As Langston Hughes once wrote, "life ain't no crystal staircase" for any of us, despite whatever our culture, social media, our "pursuit of happiness" constitutional right has led us to believe. My heart goes out to you all and my congratulations on choosing to seek help and stay the course. Keep on truckin', as we used to say!

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@peggyann69

Having chronic pain and finding the right tools to combat the pain, never mind finding a doctor who can and will work with us–this is very hard work, takes much trial and error, and keeping current with anything new on the scene. For me the formula includes very light yoga stretches, CBD gel pills, tylenol, and 120 mg. of Cymbalta. Also as clean a diet as possible as I experience more pain and inflammation from food additives. Weekly acupuncture at a PACO community clinic have saved my life, twice even three times a week if I am in a flare up. (Most major cities have 1 or 2 such clinics which offer low cost treatments and also do exchanges of free treatment for volunteer hours spent at the reception desk. Here in Tucson, the treatments are $15!) I have been on opiods, have been through all the pain treatment centers expensive options, and none of that helped. After years of searching for "help," today I accept my limitations, and I have developed a new attitude, which has probably been the biggest breakthrough. Extremes of temperature, rapidly changing barometer, kick my butt, so here in Tucson I have finally this summer accepted that I cannot go outside after 8:00 a.m., and certainly cannot drive. I have been devoting myself to some on line research and writing that I had always told myself I would do in retirement, and have chosen to enjoy that. I have finally ( I think!) finished grieving the loss of a strong healthy body that took me dancing, hiking, backpacking, jogging, playing softball, trekking in Nepal, and so forth. That grief and it's companion denial kept me in a spin of trying new treatments that I wanted to believe would give me back my previous vitality. Those years are over. They were good years. I believe my health struggles are evidence that like many women, I am a "sensitive", a person who does feel empathy deeply, and also is a canary in the coal mine, one who is the first to get sick because of social and environmental toxins that others seem to handle better for longer before they "get sick." I am no longer embarrassed or ashamed about my limitations: rather, I choose to focus on what I can still do, share honestly with family and friends about my condition and my journey, and in general have a much better quality of life right now than I have had in many years. It is a long journey, and each of us has their own story, and both good days and bad, no matter how much progress we make. As Langston Hughes once wrote, "life ain't no crystal staircase" for any of us, despite whatever our culture, social media, our "pursuit of happiness" constitutional right has led us to believe. My heart goes out to you all and my congratulations on choosing to seek help and stay the course. Keep on truckin', as we used to say!

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Thanks for your words Peggy. Appreciated.
Rachel

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@rwinney

Yes please, I too would like to hear your cannibus journey @jmweissler. Chris, I'm really racking my brain here. Hydrocodone does not help my pain enough and I've been on an opioid for 2 years. I'm opening the door to more supplements being added, keep my body moving as best I can, find the joy in each day as best I can, am going to try PEA cream (I think). I'm dedicating to regenerating, if possible, my nerves instead of masking pain. However, it will be a long while at this rate before I drop pain pills as they give me benefit and some relief, just not enough. My IV lidocaine infusions are simply not working on my legs as I hoped. They are debilitating. Heat and a tight wrap works best. My doseage of lidocaine will be upped Monday again then only one more increase before I'm maxed out. Met with neurologist this week to discuss overall game plan. Im incredibly frustrated as my pain is relentless and persistent. I was a very active and involved woman and over the past 3 years my life has sloooowed down (via multiple diagnosis) and now is trying its best to come to a screaching halt. I heed all of the advice from everyone on this forum but at the end of the day it's about what my body allows and doesn't allow me to do. Another big component for me personally are finances. I have been on disability for 2 years and am going on Medicare soon. I need to find proper supplemental isurance to cover the possibility of future treatments that are in my neurologist's wheel house. Including IVIG and plasmapherisis. Truth is I don't know if I'm coming or going. Always lived week to week before my disability now we are really drowning. Not looking for sympathy, I only bring this up because so many of the pain treatments people suggest are out of pocket. It's tough when the pocket is empty. It's a shame that it's cheaper for me to spend $4 per month through my insurance on hydro, and put opiods in my system, verses a natural product that insurance will not cover. As far as cannibus…I DO NOT wish to go through life high however, I DO want pain relief. Ughh, frustrating.

Jump to this post

@rwinney Hi I too have a lot of pain from 2 fractures in my back fibromyalgia my nerves are burning from back area Dr. wants to put cement in I wont do that . I have some tools that are cheap that you may consider . Hot showers ,Epsom salts bath in it in tub or just a washcloth, Vinegar works as well, Epsom salt rub by Procure it is great . Dr. Teal,s E.S. for showers . Ice when edema , Tens unit for tight muscles,my chiropractor told me about this, Light exercise. Of course I do pain meds . Brace for my back. Just some suggestions

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I also have severe fibromyalgia and osteoarthritis plus Sjogrens syndrome. My orthopedic ordered an MRI to check for bone cancer as my mother died of it. It showed arthritis in every joint. It's even attacking my new artificial hip. He then checked me for fibromyalgia and I responded to all the trigger sites. He said it was the worse case he had ever seen! I am taking medical marijuana- CBD with a .2mg of THC. I buy them separately and sometimes don't add the THC. I buy from a reputable firm and it has really helped. Last Jan. I had Gamma surgery for a meningioma and when the helmet was removed the headache and nausea was awful. The nurse had me take 1mg of CBD (they had told me to take it with me) and it got rid of the nausea almost immediately and the headache in about 30 minutes. I have COPD (never smoked), asthma, and AFIB. My pulmonologist told me to take the CBD to relax me when I had the gamma laser surgery as he was concerned about the type of drugs they were going to give me. The CBD really helped to relax me and it helps with the pain.. If you decide to buy it make sure the firm is reputable. Rely on the CBD consultants to help you decide on the dosage. In FL you have to go the a marijuana approved Dr. and then he/she will notify the State that you have the qualifying diseases and then you pay the State for your license. I am not happy with the marijuana Dr. as he gave me a list of things that I should take. He listed vaping (never with COPD), and 20mg of THC. I take .2 mg. BIG difference. The consultant said 20mg was way too high. He told me to take more CBD and a little THC. Their motto " Start low and go slow". Also my husband has really bad neuropathy from diabetes. He has started taking .4 mg of CBD and he can now sleep without pain in his legs. I hope this helps. Good luck.

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@lioness

@rwinney Hi I too have a lot of pain from 2 fractures in my back fibromyalgia my nerves are burning from back area Dr. wants to put cement in I wont do that . I have some tools that are cheap that you may consider . Hot showers ,Epsom salts bath in it in tub or just a washcloth, Vinegar works as well, Epsom salt rub by Procure it is great . Dr. Teal,s E.S. for showers . Ice when edema , Tens unit for tight muscles,my chiropractor told me about this, Light exercise. Of course I do pain meds . Brace for my back. Just some suggestions

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So sweet of you, thank you for your suggestions. I am taking that path and the warm bath gives relief for a decent amount of time. Also checking out essential oils. I have used Dr. Teals Epsom salts for foot soak when I had Chilblains and will get more. Really trying to balance my light exercise with rest and trying to give my own myofacial release with massage. I wish you well. Thanks again.
~Rachel

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@jmb73

I also have severe fibromyalgia and osteoarthritis plus Sjogrens syndrome. My orthopedic ordered an MRI to check for bone cancer as my mother died of it. It showed arthritis in every joint. It's even attacking my new artificial hip. He then checked me for fibromyalgia and I responded to all the trigger sites. He said it was the worse case he had ever seen! I am taking medical marijuana- CBD with a .2mg of THC. I buy them separately and sometimes don't add the THC. I buy from a reputable firm and it has really helped. Last Jan. I had Gamma surgery for a meningioma and when the helmet was removed the headache and nausea was awful. The nurse had me take 1mg of CBD (they had told me to take it with me) and it got rid of the nausea almost immediately and the headache in about 30 minutes. I have COPD (never smoked), asthma, and AFIB. My pulmonologist told me to take the CBD to relax me when I had the gamma laser surgery as he was concerned about the type of drugs they were going to give me. The CBD really helped to relax me and it helps with the pain.. If you decide to buy it make sure the firm is reputable. Rely on the CBD consultants to help you decide on the dosage. In FL you have to go the a marijuana approved Dr. and then he/she will notify the State that you have the qualifying diseases and then you pay the State for your license. I am not happy with the marijuana Dr. as he gave me a list of things that I should take. He listed vaping (never with COPD), and 20mg of THC. I take .2 mg. BIG difference. The consultant said 20mg was way too high. He told me to take more CBD and a little THC. Their motto " Start low and go slow". Also my husband has really bad neuropathy from diabetes. He has started taking .4 mg of CBD and he can now sleep without pain in his legs. I hope this helps. Good luck.

Jump to this post

Very helpful. Thank you.

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@summertime4

@edda Good morning. I just read your post. I empathize with you and also relate. I think a vicious cycle is occurring in my life too. I am in pain and have difficulty getting around, because I really don't know, but I do. This makes me avoid activities and even family gathering. In turn the depression comes in which stimulates our pain button and here we are. I also take percocet and get frightened. I also was an addiction counselor for 28 years and certainly know the perils of opiate and of course other drug use. At the same time I am tired of pain and the percocet helps so much, except for the foot pain. They only take the edge off the foot. I have osteoarthritis and several back issues and when that attacks me they wil do the job of relieving the pain. I take them as prescribed and so be it I think a suggestion for both of us right now is to get away from the depression. I take an antidepressant (obviously not working well), but in spite of pain I need to get back into water therapy, which is so available to me. I am also going back into grief counseling (lost my husband 18 months ago) and TRY to socialize a bit. Al sounds good, right. Now to do it. If the opiods help to down size your pain and make it a little easier to get about and you are taking them as directed I would not put all my focus on being a drug addict. Many drugs that people abuse are the same ones that keep people walking. God bless

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Thanks for the reminders–water exercise really helps, and I hadn't thought about it but I was in grief counseling for six months last year when deaths of close friends started to pile up–had to finally deal emotionally with my father's suicide nearly forty years ago…that might well be a part of why this summer I feel better than I have since I started this journey of dealing with fibro and chronic fatigue–of course, like most of us, joint and disc damage, depression and anxiety all a part of it. So much self care needed now–well, we are worth it! I am also in AA and was long time in alanon with lots of therapy–what a project I have been!

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@lioness

@rwinney Hi I too have a lot of pain from 2 fractures in my back fibromyalgia my nerves are burning from back area Dr. wants to put cement in I wont do that . I have some tools that are cheap that you may consider . Hot showers ,Epsom salts bath in it in tub or just a washcloth, Vinegar works as well, Epsom salt rub by Procure it is great . Dr. Teal,s E.S. for showers . Ice when edema , Tens unit for tight muscles,my chiropractor told me about this, Light exercise. Of course I do pain meds . Brace for my back. Just some suggestions

Jump to this post

ooh, yes, epsom salts do help. I have Bragg's vinegar for digestive stuff,never considered it as a rub! Great idea! Thanks!

Liked by lioness

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Jen,
I complexly understand. I too have degenerative discs from my C3 through mu Ton1, and in my L4-L5 areas, with mild scoliosis in my thoracic spine. I am constantly in pain, but have a sensitivity to medications, so I can't usually find one that fits my needs long term. So, trying to maintain my career, while pursing my education, and taking care of my family is exhausting. This causes extreme mental health concerns because I don't feel well, while having to continue to show up daily at work/school/home and perform my duties. So far I have consistently been getting needle point injections in my spine for my neck pain, and trigger point injections for my back and shoulder pain. Nothing is being done for my neuropathy, or sleep disorder, because they believe psychiatric meds will improve sleep and reduce symptom. This hasn't happened yet, and I refuse to believe that I am now required to live with receiving this many shots consistently for the rest of my life to have relief, or go through the testing of new meds that I have a litany of side effects from. I am fearful of what I am doing to my kidneys with these meds. What do you do when you need to perform, but the treatment is worse than the disease and there are not a lot of current alternatives?

Jada

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@j5852asa5162

Jen,
I complexly understand. I too have degenerative discs from my C3 through mu Ton1, and in my L4-L5 areas, with mild scoliosis in my thoracic spine. I am constantly in pain, but have a sensitivity to medications, so I can't usually find one that fits my needs long term. So, trying to maintain my career, while pursing my education, and taking care of my family is exhausting. This causes extreme mental health concerns because I don't feel well, while having to continue to show up daily at work/school/home and perform my duties. So far I have consistently been getting needle point injections in my spine for my neck pain, and trigger point injections for my back and shoulder pain. Nothing is being done for my neuropathy, or sleep disorder, because they believe psychiatric meds will improve sleep and reduce symptom. This hasn't happened yet, and I refuse to believe that I am now required to live with receiving this many shots consistently for the rest of my life to have relief, or go through the testing of new meds that I have a litany of side effects from. I am fearful of what I am doing to my kidneys with these meds. What do you do when you need to perform, but the treatment is worse than the disease and there are not a lot of current alternatives?

Jada

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Hi Jada
I feel your pain. After I fought through cataracts and cornea transplants, a few years later I developed chronic migraine, neck/spine issues then later a diagnosis of Small Fiber Neuropathy which put many pieces of my puzzle together. I worked through it all with a family, children in sports and many activities, and managed a branch of the bank I worked at for 27 years. Inevitably I had to bow out and go on what I had hoped to be temporary disability. Unfortunately, that turned permanent. It is a tough challenge to juggle so many hats and be responsible for so much while be in pain. I suggest asking for help from wherever it may be possible. I hope you have a supportive network around you because that is so important. Keep persevering and be your own advocate through it all. Search for answers, remedies and don't give up. Here I am, doing exactly that through this forum. I'm glad you posted. Reaching out here will offer you support, ideas and suggestions. Keep grinding.
Rachel

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