Feedback on Linzess for Irritable Bowel-C or Chronic Constipation

Posted by sue225 @sue225, Mar 9, 2019

I have both of the above-conditions. Took Linzess, (called Constella in Canada) and got terrible stomach pain. Feeling desperate and thinking about trying it one more time. Interested in hearing what kind of experiences other people have had with linaclotide/linzess.

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@lebanon100

I've been taking constella/linzess for about a year now for IBS. My lower abdominal pain has become worse. Linzess? Should I go off it?
I welcome your comments.

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It didn't work for me....but Trulance and Miralax do!! Best of luck to you..it's such a terrible problem.. prayers!!

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It is important to take Linzess right away in the am with like 8 0z of water. 30 mins before eating any food.

For me, it didn't work. I have motility issues due to dysautonomia. My stomach has issues with the muscle activity (peristalsis).

Also, my pelvic floor dysfunction more than likely doesn't help. Some of my muscles are so right and have knots, while other muscles are weak.

Drs usually recommend more exercise, drinking more fluids (water), and increasing fiber intake gradually. While that would help with the majority of those with common constipation, it doesn't work for everyone.

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Hi, newest constipation drug is called IBSrella has anyone tried it. It was just awful for me. All the others, every one of them I was on did nothing. Anyone try this latest one.

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I tried it!! Didn't work!! Neither did Linzess or Amtisia (sp?) Trulance and MiraLAX work for me...prayers for you!!

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@standinginfaith

I tried it!! Didn't work!! Neither did Linzess or Amtisia (sp?) Trulance and MiraLAX work for me...prayers for you!!

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Me either, I’m up to 30 laxatives at bedtime. Running out of time.

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@mothermary1

Me either, I’m up to 30 laxatives at bedtime. Running out of time.

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Oh my goodness!! Have you tried the Trulance?? And I also Miralax every PM at dinner with a full glass of water..some days it might take 2 doses of Miralax.. somedays I can go without..and I do try to drink 3 bottles of water a day..and eat one Thomas Multigrain English Muffin (the wheat one has sucralose..a gut bacteria no-no) with Country Crock plant butter every night..(8 gr fiber) and 2 Vanilla Plant based Ensures a day (5 gr fiber each) and a VSL3 Probiotic..daily.. good probiotic..Amazon has them.. have to be refrigerated.. they ship them really well with I think it's dry ice..pricey.. but really worth it.. I pray some of this helps you!!

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@standinginfaith

Oh my goodness!! Have you tried the Trulance?? And I also Miralax every PM at dinner with a full glass of water..some days it might take 2 doses of Miralax.. somedays I can go without..and I do try to drink 3 bottles of water a day..and eat one Thomas Multigrain English Muffin (the wheat one has sucralose..a gut bacteria no-no) with Country Crock plant butter every night..(8 gr fiber) and 2 Vanilla Plant based Ensures a day (5 gr fiber each) and a VSL3 Probiotic..daily.. good probiotic..Amazon has them.. have to be refrigerated.. they ship them really well with I think it's dry ice..pricey.. but really worth it.. I pray some of this helps you!!

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Unfortunately this is a five year ordeal for me and nothing works. I was drinking too much water and was diagnosed with hyponatremia, who would have thought.
Now Gastro cut me to 32 ounces per day, at most. Fiber binds me even more. My diet is extremely limited. No dairy, no gluten and no sugar. I get about a quarter cup of mashed fresh carrots a day and that is about all I can handle for fiber. Carbs are another issue. I blend a lot.
Thanks for the advice but I’ve tried everything. Beware of MiraLAX because for whatever reason it’s what most doctors prescribe. I don’t get why.
It has PEG and the safety of it daily. They say it’s fine short term but no studies done long term. It concerns me.

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@mothermary1

Unfortunately this is a five year ordeal for me and nothing works. I was drinking too much water and was diagnosed with hyponatremia, who would have thought.
Now Gastro cut me to 32 ounces per day, at most. Fiber binds me even more. My diet is extremely limited. No dairy, no gluten and no sugar. I get about a quarter cup of mashed fresh carrots a day and that is about all I can handle for fiber. Carbs are another issue. I blend a lot.
Thanks for the advice but I’ve tried everything. Beware of MiraLAX because for whatever reason it’s what most doctors prescribe. I don’t get why.
It has PEG and the safety of it daily. They say it’s fine short term but no studies done long term. It concerns me.

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Bless your heart!! I am so sorry!! I am concerned about the MiraLax myself as it is also used in anitfreeze.. IDK.. all we can do is pray!

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@standinginfaith

Oh my goodness!! Have you tried the Trulance?? And I also Miralax every PM at dinner with a full glass of water..some days it might take 2 doses of Miralax.. somedays I can go without..and I do try to drink 3 bottles of water a day..and eat one Thomas Multigrain English Muffin (the wheat one has sucralose..a gut bacteria no-no) with Country Crock plant butter every night..(8 gr fiber) and 2 Vanilla Plant based Ensures a day (5 gr fiber each) and a VSL3 Probiotic..daily.. good probiotic..Amazon has them.. have to be refrigerated.. they ship them really well with I think it's dry ice..pricey.. but really worth it.. I pray some of this helps you!!

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I see you have said that Sucralose is a gut bacteria no-no. I take Metamucil, 1 T in 8-10 oz of water twice daily. It has Sucrose in it. Is this the same thing?

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@busylady

I see you have said that Sucralose is a gut bacteria no-no. I take Metamucil, 1 T in 8-10 oz of water twice daily. It has Sucrose in it. Is this the same thing?

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Google says that Sucralose is and artificial sweetener.. and sucrose is a natural one.. I hope this helps you some!! Great "investigation" on your part!! They hide so much in the things we consume!! Prayers for you!!

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