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Fearing risks of Prolia

Posted by slr1 @slr1, Jan 6 8:55pm

I am going to my pcp tomorrow morning to discuss whether to start Prolia or Jubbonti after getting dexa scan results showing my osteoporosis has gotten worse. I took Ralaxifene for the last 2 years and it didn't help. I have researched these 2 drugs and have read a ton of bad side effects from patient reviews and I am really nervous to try! After taking Boniva just one time in the past, I felt like I was ran over by a truck for 3 days and I refused to ever take a biphosphate again. I am thinking about not starting a new drug and exercising more. Any input is much appreciated!

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sassysaveur | @sassysaveur | 3 days ago
In reply to @deb0117 "@sassysaveur Actually you bring up a good point that I have thought about. I wondered if..." + (show)
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@sassysaveur Actually you bring up a good point that I have thought about. I wondered if there was another covid- like period of time whether I could get the shot in the time frame of every 6 months. I suppose I would transition to a bisphosphonate at that point. From what I understand from my endocrinologist it's very important that you take something if you stop Prolia. I am now 75 and after my last fracture, I decided I had to take stronger meds. Surgery is not fun at this age. I will have another dexa in August and will report on this site my improvement. I definitely improved after the year on Evenity even to osteopenia in some areas. After 5 years on actonel I had reached a plateau and began to lose bone mass again.

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@deb0117 Did your doc say you could stay on Prolia indefinitely? Like 20 more years or until end of life? Is there no limit as to how many years you can be on this drug? Also, I was thinking that as we age accessing the injection might be difficult. Transportation, mobility and illness could prevent us in our 80's from being able to reliably get to the injection location. Maybe I move to a assisted living or have dementia..... then what? I don't know the idea of forever just seems like alot to me. Thanks for sharing.

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deb0117 | @deb0117 | 3 days ago
In reply to @sassysaveur "@deb0117 Did your doc say you could stay on Prolia indefinitely? Like 20 more years or..." + (show)
Profile picture for sassysaveur @sassysaveur

@deb0117 Did your doc say you could stay on Prolia indefinitely? Like 20 more years or until end of life? Is there no limit as to how many years you can be on this drug? Also, I was thinking that as we age accessing the injection might be difficult. Transportation, mobility and illness could prevent us in our 80's from being able to reliably get to the injection location. Maybe I move to a assisted living or have dementia..... then what? I don't know the idea of forever just seems like alot to me. Thanks for sharing.

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@sassysaveur I do go to an endocrinologist who specializes in osteoporosis at Johns Hopkins and every year I have a dexa scan and we will decide how to proceed. If prolia works out for me I can stay on it I think forever. But, to be honest, I will see her in August and I will ask her about this and then touch base again. There are other stronger medications than the bisphosphonates. I did not realize that the pills sometimes plateau for people and you have to take stronger drugs. I will definitely stay in touch.

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