Family and friends deny long covid

I hope that my post made it to the posting area. 🤞🏻🙏🏻

I don’t have any suggestions, but I hope you’ll get some. I was diagnosed with post covid syndrome by my ENT at Duke Hospital, confirmed by Duke neurologist. My other doctors accepted it. I’m not sure how others, including my family , felt about the diagnosis mattered. Their opinions didn’t impact me. Also, since there isn’t any real treatment for LC, the diagnosis wasn’t of any real benefit to me either. For me, convincing others the reality of LC isn’t a priority.

@suefish
Get a new neurologist and get evaluated and ask for mri of brain. Also, have you had extensive bloodwork to check for abnormalities, viruses, thyroid function, hormone levels, etc. and have you ever been tested for sleep apnea?

Hope this helps. I’m an old man but in really good shape in my 60s I was bench pressing 90 pound dumbbells. Each hand
Things were going great
F—- Covid hit I got all the same symptoms that you have specially brain fog. memory was horrible Can’t remember much after 2 to 3 weeks would feel like two or three years-what I kept doing for the next 2+ years was working out eating good and having good support system, my wife.
I was pretty bad at one point I needed help to walk 10 or 12 blocks where before I could walk all day
by the time I got home I felt somewhat OK finally now I’m getting better feeling better. It takes time.
Ps. This would’ve usually taken me give or take five minutes to write now took me 10 to 15 minutes but two years ago it would’ve took me 30 to 40
Stay strong

I can tell you that after almost 3 years of Long Covid, my body is beginning to feel somewhat normal. I still have no taste or smell but recently began having laser treatments through my Chiropractor. Many of my Long Covid symptoms have gotten better with time, however, I did have 7 Stgellate Ganglion Block injections and they helped with my anxiety/PTSD. I don’t care who believes me or not, my doctor told me that I have Long Covid and I believe I do, but it is getting better. I still have body tremors if I push myself too hard and there are days when my brain just doesn’t remember stuff, but I try not to let it bother me. I don’t enjoy being in this state, but I know we could all be way worse off. One day at a time…

First, don't beat yourself up about a remote location. I'm steps away from Cleveland Clinic, AND I work as a paralegal for a lawfirm specializing in mass torts for environmental disasters like RoundUp, mesothelioma and Camp Lejeune. I got the vax in 2021 and have been begging them for answers ever since. Cleveland Clinic's own Long Covid Recovery program, is filled with specialists that deny the existence of the half-organic, half-lab-made virus protein, lovingly referred to as Spike. A term thrown around like it is a dog name. So I went elsewhere and it took 10 months to be seen.

Just last week, Dr. Tenpenny's office (reknown DO, naturopathy, the whole 9 yards for Long Covid) gave me a simple blood test. SARS antigen spike, is all you have to say that you want tested. Probably you can go to a blood lab for the draw, and get the results regardless of a doctor standing by for treatment. There's not a single standard treatment from western medicine anyway. The opposite exists - long standing "scare mongering", warning we better not violate man's laws of medicine. All the while, violating God's law of medicine is exactly what got us here in the first place.

So here we have the right person (you) asking the wrong questions to the wrong people, is why you're so troubled. We all are.

What the test will reveal: < .8 is "normal". Well, if a protein with spikes on it is not humanly "normal", in the first place, how is it that 80% of the global population will detect the protein anitgen? Because by now, herd immunity has been achieved. You can have this, and not be "sick". Most of us do. That is why "they" ignore "us". Ignorance. "It aint true if I can't see it. I'm the only one allowed to see 'it', and 'trust me', 'nothing' is there. I looked really really hard this time. Quit asking me or I'll cry. Then I'll have you fired." BULL.

Our problem twists further. We are sick and we know the "< .8" measurement is meaningless. What happens when I am tested?...hmmmm well, I expect my result to be something like "1.0". Afterall, I'm still working 40 hours, I'm just doing so with multiple adaptations, a dog and pony show, and a sprinkling of fairy dust to make it to 5 o'clock. A little validation is all I really need. Am I chasing my tail, taking Meth Blue, NAD, LDN, PERT, and a miriad of treatments? Coz if this spike comes back negative, just give me a shovel. I'll exhaust myself by 6 feet and please just cover the corpse with dirt.

Ya know what? Turns out, to get better, you don't need the validation either. See, when I got my results, they weren't "1.0" or even 5.3! The test result in red was "2500.0". I read it again. twenty-five hundred. Two THOUSAND five HUNDRED times the acceptable (unacceptable) level of "normal".

Ya know what else? Guess what the upper limit of the test is? You got that right, 25freakingHundred.

ANALOGY: For even numbers-sake and rudimentary generalization, let's say normal serum "ABC" level is 100. You get a cold. It goes to 110. You get really sick, it goes to 200. You get better and sometimes it goes to 90, but in general, if ABC is at 100, you're good to go. "ABC Cancer" is 1500. Your level is 2500. How F'ed are you? Well, luckily, there's treatment for "that"but...

What about spike protein blood injury? What do we call this? Long covid? Or - did you have a sniffle? Coz I got more like end-stage, invisible blood cancer here. Let's stop padding the diagnosis with some playground term like Long Covid. This is a permanent blood injury, that causes malabsorption, that causes micornutrient depletetion, that causes brain impairment, and organ impairment, and however long you can ride the bike with broken wheels, eventually, you reach a crash and a burn.

Don't worry...the doctors who gave me this result said, "Everything is fine. Try eating more salmon, and these $40/bottle supplements (x 12), take your blood out and clean it in our new machine that we are supposed to ignore the fact it just got REJECTED for the machine being built in non-regulated countries...(learned zero from CPAP), it's a mess.

My advice is, THIS right HERE, is your validation. Congrats, you're in the club.

Now what.

@brainisbananas "Let's stop padding the diagnosis with some playground term like Long Covid"....that's what it is...damage.Long Covid.Viral damage that affects every body system differently.I'm still healing...5 years out now.I'll be healing for a long time methinks.Massively better now though.Supplements.That's what I started 3 years ago.Targeted at rebuilding cell function and all that.There are some that can truly help the system reorganize and function as it should.NAC,Glutethione,Potassium,mutimineral capsules.These things definitely got me headed in the right direction.But it takes time.You can't give up.God is Good.71 here...it's healable if it hasn't been too extreme an infection.Mine was really bad.Had to research a lot,and try the supplements.I believe they've helped me to where I am today...

@bigj thanks so much for the uplifting response. You’ve made my whole day feel better. Sue F.

@lkirnbauer, thanks so much!! You gave me hope!

Suef

@h2998sc
Thanks for your support and thoughts! @suefish(not Rob)