Factor V Leiden, HIGH Factor VIII, and Porto-Sinusoidal Vascular Dis.

Posted by sinojosvacios @sinojosvacios, May 22 5:22am

Hi all - Just posting to see if anyone has this constellation of symptoms re: rare microvascular liver disease as well as high risk clotting signatures. I have not yet had any serious clotting events - the tests were done in response to my PSVD - although I do experience a lot of 'vascular' symptoms such as having livedo reticularis all over my body, telangectasia, and other autonomic symptoms like temp dysregulation and heart racing.

Thanks!

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I have Fac5Leiden clotting gene, but I've never heard of the other conditions. I don't think I have ever been tested for those. I had an extensive blood clot that needed removal, and that is when the hematologist tested me for Fac5, which came out positive, so I'm on Eliquis for the rest of my life.

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