Prostate Cancer Warriors Support Group - Wednesdays nights

Posted by ringmastr1 @ringmastr1, Jan 3 5:54pm

I belong to a support group that meets on Zoom every Wednesday night at 7pm EST. The moderator (Denis) does a great job of keeping track of everyone and he gives everyone a chance to talk. You can say as much or as little as you want. You will find a great deal of information, support and brotherhood in the meeting. You must copy/paste this link into the browser on your phone/PC. Simply clicking on the link usually doesn't work. https://us02web.zoom.us/j/82817487939?fbclid=IwAR1hMd3Vla81un2Kr0W6n4X-uwt4ntYq6eEdqTWhaz5lQyBtKSgAIhVKa7w_aem_AUekG1IP7LvVyxkziuIuth9TiZ9xy380J9mycH07Xc4S6NgenwdbT9ApRdWpnLMpeO8

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

koji480 | @koji480 | Jan 24 7:17pm

In reply to @mothergoose1 "I’m a 64 year old male with prostate cancer stage 4 that metastasize to my bones…..." + (show)

Why are you refusing to do ADT or similar?

aircam | @aircam | Jan 25 7:54pm

In reply to @mothergoose1 "I’m a 64 year old male with prostate cancer stage 4 that metastasize to my bones…..." + (show)

I don’t want ADT either. Lucky I do not have pain yet. Cancer moved to my spine and a couple of ribs. Report was said to be minor at this time. My doc. Wants me to do Eligard after a dose of casodex (bicalutamide). I was on casodex for 2 months. My psa dropped from 21 to 6.5. Stopped casodex because I came down with heart failure. With that I quit casodex and now I have crt-d difilabrator. Meanwhile my psa went up to 25. I went back on casodex, hopefully to bring my psa way down. Too many bad stories on Eligard. It don’t cure or treat cancer. It is a palliative care, to relieve you of pain. But I do not have pain yet. I’m 83 next month, feel pretty good with all the meds my cardiologist gave me. I am also my wifes’ caregiver. Any opinions will be very welcome. My opinion is at 83 years of age I’d rather go with meds to control the pain when it comes.

ringmastr1 | @ringmastr1 | Apr 12 8:07am

When I was diagnosed in January 2023 with stage 4 PC at age 54 I was traumatized. My doctor quickly took action and everything is stable but I seriously needed some emotional support. In June 2023, I discovered a group of men who met weekly on Zoom to discuss our disease. Shortly thereafter a Facebook group was created by these men called "Prostate Cancer Warriors". I highly recommend that anybody who needs emotional and mental support join our group and attend a few weekly Wednesday night Zoom meetings. It is basically a group of 20-30 guys talking to other guys. No judgment, lots of support and useful information about various treatments and experiences that the guys have been through. Please share this information with anybody you know who has prostate cancer and needs some emotional support. This group changed my life and my outlook on my disease.