Extreme pain in my feet. Neuropathy

Posted by jim777 @jim777, Mar 31, 2023

This started in Aug. 2008 at age 43, I put my sneaker on and it felt like the sock was bunched up at the tip of my big toe. Adjusted the sock and it was still there, checked the sneaker and found nothing. I finally went to buy new sneakers and thats when concern set in, it was the same feeling when trying on new sneakers. No pain at this time. a few months went by and felt some discomfort in my toes in both feet, my doc sent me to a foot doc, he said it wasn't my feet but something effecting my feet, maybe my lower spine? The discomfort in my toes/ball of my feet stared becoming painful as time went on. in 2011 I went to see a neurologist, got an MRI and there was some issues but nothing major, also no diabetes. I basically got nowhere. The pain would start in the afternoons and night. When I woke up it would go away, my feet almost felt normal but sometime in the afternoon it would start, pain level was low to midrange. I started putting a large blue gel icepack around my foot at night while in my recliner, switching off each foot. The cold would help. That eventually led to putting my feet in a foot basin with ice and water. The pain gradually got worse. In 2021 it finally moved from only being on my toes/ball of my feet to my arch and top of my foot. Took a chance with the neurologist again but got nowhere. in 2022 I started to get sharp stabbing/electric jolts, not all the time, some days nothing, then one toe would get a shard stab every 5-10 minutes. When this happens its usually the same place, the next time a different to. It seems to now effect my legs from the knee down. Sometimes when in the recliner my calves feel discomfort. I never had a lot of hair on my legs and the hair was a light color, almost white but I notice there is no hair from my knee down. Early this year it moved to my hands. Not nearly as bad as my feet and sometimes they dont bother me. The odd thing is warm water makes them feel better when they hurt where as my feet ice water takes some of the pain away.

A few notes. Does not effect my motor skills and never had pins and needles. Ove the last 8 yrs I've tried Tramadol, then went to Neurontin and now Lyrica. Now of them help with the pain. The only thing that helps is Percocet but cant get a permanent script for that. I actually have a few but dont take them because of the Lyrica(Pregabalin), 200mg 3 times a day. Money is an issue to, no insurance. I also tried the usual like ALA, B1, b12, turmeric etc I spent a lot of money over the yrs, nothing ever worked. The burning part I thought may be Erythromelalgia which it cold still be along with neuropathy. Whats the pain like at times? I tell my wife its like getting your foot run over by a truck, them having boiling water poured on it. Its two pains, a deep nerve pain with a burning pain.

Anyone have a similar experience? I just want pain relief and to fix this issue. Any help would be greatly appreciated.

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@julkun

It restricts your life, so you really are living a different life. A life I am not happy about where the pleasures are reduced by so much. I know I won't be cured but I just want some relief.

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my husband feels the same way you do.

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@julkun

It restricts your life, so you really are living a different life. A life I am not happy about where the pleasures are reduced by so much. I know I won't be cured but I just want some relief.

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Same. I go to pain management on Wednesday. Just hoping for some relief.

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@annregister

Same. I go to pain management on Wednesday. Just hoping for some relief.

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I wish you luck, but pain management can do very little for neuropathy.

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...just a shot in the dark and without going into my history again, toe pain starts when i go to bed which is very early , lie there and ipad or tv til sleep and toes painful and if i wiggle its like they are burning hot with glass in between and i made myself home made warm pad (tube of fabric with few cups raw rice in, sew or tie up; warm up in microwave not too hot, and drape it over and under my toes/ends of feet... the only relief I get (have laundry list of other issues) but sometimes find warm for toes/feet helps me more than the cold packs for cheeks etc... might be worth a try?

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@julkun

I wish you luck, but pain management can do very little for neuropathy.

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Yep!!!! 100% right on that. 1st appointment today with management and I was left feeling hopeless and discouraged. I’m at a loss.

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To control my burning of my feet I take Lyrica 3@75 mg per day, and pre bed I also us an over the counter foot cream called Pys-Assist. I apply it to my feet prior to sleep and re apply during the night if I wake up with pain. I also try to Tens my feet once a day.

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Certified Acupuncturist has helped me. Do your research to find one. You will thank me

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@piatkowskisc

To control my burning of my feet I take Lyrica 3@75 mg per day, and pre bed I also us an over the counter foot cream called Pys-Assist. I apply it to my feet prior to sleep and re apply during the night if I wake up with pain. I also try to Tens my feet once a day.

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I had a Treatment called Sansex took all my Foot Pain away

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@adejuliannie

I had a Treatment called Sansex took all my Foot Pain away

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What is that? I googled & nothing came up.

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@cher27

What is that? I googled & nothing came up.

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Sorry I misspelled it its called Sanexas it where they use electrical signals to get Nerves working. Been 2 years since I had treatment an my Feet are 98% better. Before I couldn't feel them.

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