Extreme pain in my feet. Neuropathy

Posted by jim777 @jim777, Mar 31, 2023

This started in Aug. 2008 at age 43, I put my sneaker on and it felt like the sock was bunched up at the tip of my big toe. Adjusted the sock and it was still there, checked the sneaker and found nothing. I finally went to buy new sneakers and thats when concern set in, it was the same feeling when trying on new sneakers. No pain at this time. a few months went by and felt some discomfort in my toes in both feet, my doc sent me to a foot doc, he said it wasn't my feet but something effecting my feet, maybe my lower spine? The discomfort in my toes/ball of my feet stared becoming painful as time went on. in 2011 I went to see a neurologist, got an MRI and there was some issues but nothing major, also no diabetes. I basically got nowhere. The pain would start in the afternoons and night. When I woke up it would go away, my feet almost felt normal but sometime in the afternoon it would start, pain level was low to midrange. I started putting a large blue gel icepack around my foot at night while in my recliner, switching off each foot. The cold would help. That eventually led to putting my feet in a foot basin with ice and water. The pain gradually got worse. In 2021 it finally moved from only being on my toes/ball of my feet to my arch and top of my foot. Took a chance with the neurologist again but got nowhere. in 2022 I started to get sharp stabbing/electric jolts, not all the time, some days nothing, then one toe would get a shard stab every 5-10 minutes. When this happens its usually the same place, the next time a different to. It seems to now effect my legs from the knee down. Sometimes when in the recliner my calves feel discomfort. I never had a lot of hair on my legs and the hair was a light color, almost white but I notice there is no hair from my knee down. Early this year it moved to my hands. Not nearly as bad as my feet and sometimes they dont bother me. The odd thing is warm water makes them feel better when they hurt where as my feet ice water takes some of the pain away.

A few notes. Does not effect my motor skills and never had pins and needles. Ove the last 8 yrs I've tried Tramadol, then went to Neurontin and now Lyrica. Now of them help with the pain. The only thing that helps is Percocet but cant get a permanent script for that. I actually have a few but dont take them because of the Lyrica(Pregabalin), 200mg 3 times a day. Money is an issue to, no insurance. I also tried the usual like ALA, B1, b12, turmeric etc I spent a lot of money over the yrs, nothing ever worked. The burning part I thought may be Erythromelalgia which it cold still be along with neuropathy. Whats the pain like at times? I tell my wife its like getting your foot run over by a truck, them having boiling water poured on it. Its two pains, a deep nerve pain with a burning pain.

Anyone have a similar experience? I just want pain relief and to fix this issue. Any help would be greatly appreciated.

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Profile picture for annregister @annregister

Same. I go to pain management on Wednesday. Just hoping for some relief.

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I wish you luck, but pain management can do very little for neuropathy.

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Profile picture for julkun @julkun

I wish you luck, but pain management can do very little for neuropathy.

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Yep!!!! 100% right on that. 1st appointment today with management and I was left feeling hopeless and discouraged. I’m at a loss.

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To control my burning of my feet I take Lyrica 3@75 mg per day, and pre bed I also us an over the counter foot cream called Pys-Assist. I apply it to my feet prior to sleep and re apply during the night if I wake up with pain. I also try to Tens my feet once a day.

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Certified Acupuncturist has helped me. Do your research to find one. You will thank me

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Profile picture for piatkowskisc @piatkowskisc

To control my burning of my feet I take Lyrica 3@75 mg per day, and pre bed I also us an over the counter foot cream called Pys-Assist. I apply it to my feet prior to sleep and re apply during the night if I wake up with pain. I also try to Tens my feet once a day.

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I had a Treatment called Sansex took all my Foot Pain away

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Profile picture for adejuliannie @adejuliannie

I had a Treatment called Sansex took all my Foot Pain away

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What is that? I googled & nothing came up.

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Profile picture for cher27 @cher27

What is that? I googled & nothing came up.

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Sorry I misspelled it its called Sanexas it where they use electrical signals to get Nerves working. Been 2 years since I had treatment an my Feet are 98% better. Before I couldn't feel them.

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Profile picture for adejuliannie @adejuliannie

Sorry I misspelled it its called Sanexas it where they use electrical signals to get Nerves working. Been 2 years since I had treatment an my Feet are 98% better. Before I couldn't feel them.

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Thanks, I'll check it out.

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I have non diabetic neuropathy...over 13 years now....I tried everything , blue laser, acupuncture ,, acupressure, and many others....after a couple of years of trying all the conventional drugs gabapentin, lyrica, and others I was fortunate to stumble on a combination of drugs that has allowed me to function almost normally for the past ten years or so...
I take...
6mg hydromorph contin( slow release)......at 7am and 7pm
100mg jamp- pregabalin ...................at noon and 9am
this combination has reduced the pain, needles ,,,cold, hot from a 9-10 to an acceptable 2
Herb

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Very similar symptoms following an autoimmune reaction to a spiked drink in 2012. Good days, very bad days. Tried all the usual drugs Lyrica etc, no great long term changes. Side effects that limit your life in terms of being constantly damped down. Sensor nerve damage only thank god. But pain mostly later in the day. Have you tried medical cannabis? Or have you tracked any events - food, weather, sound, stress that make a difference?

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