extreme outer ear pain

Posted by ellienewfan @ellienewfan, Feb 4, 2013

Please….someone help me.

I’ve visited my allergist, an ear-nose-throat specialist and my own internist.
None of them have ever heard of my problem and don’t know how to help me.

Started approx 20 yrs ago, Every couple of months I would get an awful pain on one of my ears if I had been laying on it during the night. It would happen to either ear, whichever one I laid on.

To describe the pain. It is so intense that it wakes me. Pain is NOT inside the ear but around the edges of the entrance of it. It is so painful, I can’t touch it. It will be throbbing. It also hurts tremendously behind, towards the bottom back of the ear. Can’t touch that either. The only thing that will make it go away is when I then get up and stand and within approx 30 min it is gone. I even tested it by massaging behind the ear (once I could bear to touch it) and it seemed to make pain go away faster.

The last approx 3 years, I have no longer been able to even lay on either ear when in bed because now the pain will come every time. I have learned to sleep on my back. Sometimes I would still move onto my side during night, and wake up with pain.

For last 6 months, I’ve been having pressure and achy feeling around one of the ears, even while laying on my back. Then I started getting the pain even while sleeping on my back.

I am very much afraid that the day will come when I will no longer be able to lay down in my bed to go to sleep.

I am desperate to get to the bottom of this and perhaps for first time in 20 years be able to comfortably lay on my side in bed.

My ENT doctor said my ears are healthy …. i have no hearing loss.

This ear pain, however, is starting to affect my daily living, since I don’t seem to be able to get the restful sleep I need.

I will be forever grateful if someone could pinpoint this. thanks.

It's systemic. I would be pasting my whole body.

Has anyone else tried drinking more water? This seems to help me when I get a similar pain. I keep a bottle on my bedside table.

@cutestain I keep a bottle of water by bedside but for dry mouth I do drink alot of water throughout the day and found sleeping without a pillow helps me .

I've had this pain for 20 some years. I wake up with pain at the tip of my ear, it seems to be only at the tips of the ear. It's like the pain when as kids you would bite down on the middle of your finger nail for a minute and then release the bite, the pressure pain would be instant. I get this on both ears, making it very difficult to get a good night sleep. I try sleeping on my back, but manage to roll over on to my side. I have spent tons of money trying to find the right pillow in which I've had no luck with. It's very frustrating, if anyone who is dealing with this and has found a fix for it, I would love to hear of it.

@dadams24

Also, regular over the counter pain meds would not work for this type of pain, so if you've tried advil, Tylenol, motrin, anything of that nature, the pain will still be there. So if you notice nothing is working, that means it's nerve pain (usually tegretol or neurotnin) are prescribed for this type of pain. However, ask any person with TN, they will have their own concoction of pain regimen to help get them thru.

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Interesting. I'm doing neurotin now. This whole cartiledge ear pain thing is a mystery. There is 1 pain relief that works, but it certainly is not a product that you would acknowledge using, at least not in public. I hope you are feeling better.

@garyd51

Interesting. I'm doing neurotin now. This whole cartiledge ear pain thing is a mystery. There is 1 pain relief that works, but it certainly is not a product that you would acknowledge using, at least not in public. I hope you are feeling better.

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Does the neurontin work? Just started on med for migraines although I don't have them. Doctor thinks it's Autoimmune. Also, just started an AID diet. Already started helping with some of my other symptoms. We'll see. Is helping my brother.

@nibor63

Does the neurontin work? Just started on med for migraines although I don't have them. Doctor thinks it's Autoimmune. Also, just started an AID diet. Already started helping with some of my other symptoms. We'll see. Is helping my brother.

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Can't tell YET on neurontin, but i;ll keep at it. Along wit a small daily prayer. What a mystery.. You kinda understand an elbow, knee, finger, but ear cartiledge? No wonder physician looks at us like you are nuts.

Hello: I’ve had this problem on my left ear since having Btain surgery for a tumor on my brain stem. Everything bothers that ear. I get ear pain a lot. And sometimes it’s on the tips of my ears. I use Lavender oil, only thing that seems to calm the nerves.

@rosesareredmylove2016

Hello: I’ve had this problem on my left ear since having Btain surgery for a tumor on my brain stem. Everything bothers that ear. I get ear pain a lot. And sometimes it’s on the tips of my ears. I use Lavender oil, only thing that seems to calm the nerves.

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I hope you are doing well.

@bearylynn

I’ve had same symptoms for 20 years.

When I sleep on my side, I bunch edge of memory foam (lightweight) pillow under my neck so force of ear on pillow is minimal.

Also – when really acting up – small amount of terazol cream (yes, it’s a ‘vaginal’ yeast cream — and I’ve also used it for yeast in my dog’s ear) on a q-tip swabbed around the ear canal.

In 2007, I had ear tubes placed (not related to this). My left ear, which is the one with the soreness problem, became VERY painful and would bleed when I slept on my left side. After deciding drum was infected at the tube, it was removed. Surgeon was surprised at how infected it was — even needed to patch the drum. I think that’s when I decided to try to treat for yeast.

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Did your Dr. give you any antibiotics for the infection? If so, did the ear pain subside during that time?

Had antibiotics. Didn't make a difference.

No infection. Inflammation.

@garyd51

Can't tell YET on neurontin, but i;ll keep at it. Along wit a small daily prayer. What a mystery.. You kinda understand an elbow, knee, finger, but ear cartiledge? No wonder physician looks at us like you are nuts.

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Several doctors have told me that I'm nuts. One even made the CRAZY sign.

@ellienewfan I read your post from Feb 4, 2013. I am 81 years of age and have had the same pain as you for 20 years. All your symptoms are exactly the same as mine. In the past 6 years, since your post, have you gotten anyone to tell you what to do for the pain. Has it ever improved. Thank you for responding…

@nibor63

Several doctors have told me that I'm nuts. One even made the CRAZY sign.

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@nibor63 Hi I have tinnitus no ear pain but I've yells inflammation of you can keep it on your ear also ginger I've never used it in a compress but have drank it in tea form but it is suppose to help but just making a compress just a suggestion

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