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Experience with FCD Type III Surgery – Occipital-Temporal Lobe in a To
Hello everyone,
I’m a mom of a 2-year-old girl recently diagnosed with Focal Cortical Dysplasia (FCD) Type III, located in the left occipital-temporal region of her brain.
She underwent epilepsy surgery about 2.5 months ago. Initially, everything seemed stable, but unfortunately, her seizures returned a few weeks post-op. Most seizures now occur when she’s tired or just before sleep.
Genetic testing came back negative for any pathogenic mutations, and she is currently on a combination of Keppra and Lacosamide.
I would be so grateful to connect with any parents or patients who have faced something similar.
My questions are:
• Has anyone had experience with FCD Type III in the occipital-temporal region?
• Did surgery help long-term, or did seizures come back?
• Was there any impact on vision, speech, or development after surgery?
• Did your child require a second surgery or further testing like stereo-EEG (SEEG)?
Any shared experience or advice means a lot to us right now. Thank you so much in advance! ❤️
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Hi @zeljmar
Welcome to our group at Connect.
I'm so sorry to hear about your daughter's surgical journey at such a young age. I can only imagine how challenging this has been for you, your child, and your entire family, especially after hoping the surgery would bring lasting relief.
While I don't have personal experience with epilepsy surgery or FCD Type III specifically, I wanted to reach out because I know how isolating these difficult moments can feel.
Your concern about potential impacts on speech resonates with me. I experience some speech difficulties related to my left temporal lobe epilepsy with mesial sclerosis in my hippocampus, even without having surgery. The left temporal lobe can indeed affect language functions. So your awareness of these potential issues shows how thoughtfully you're monitoring her development.
You mentioned she's currently on Keppra and Lacosamide. Have they been effective in controlling her seizures? Were anti-seizure medications kept right after surgery, or were they introduced when the seizures returned?
I hope other members here who have experience with pediatric epilepsy surgery and/or FCD Type III in this brain region will chime in.
Sending you strength and hoping for better days ahead for your little one. ❤️
Chris
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I’m truly sorry to hear about the difficult time your family is enduring. I can only imagine how challenging it must be for you all. If you feel comfortable sharing, I’d like to know if the seizures after surgery are different, more or less frequent severe, or if they remain the same. Please take care of yourself and your loved ones.
Blessings,
Jake