Experience with Abilify

Posted by Guener @guener, Jul 6, 2016

I'm having a good outcome so far on 2mg of Abilify supplemental to 20mg of Lexapro within the first week. Side effects for me include some nausea, dizziness upon standing, and insomnia, all diminishing. I'm just wondering how others are doing, what dosage you're on if willing to share, etc.

Interested in more discussions like this? Go to the Depression & Anxiety Support Group.

@netter9064

Hey, well I don't know for sure why.. like you I can only speculate:
1) They think (hope) that the benefits outweigh the negative.
2) They hope that it will be a side effect that we won't get.
3) They are so "taxed" with patients that they don't have time to read about all of the potential side effects of medication.
4) Giving them the benefit of the doubt, they are prescribing what they feel would work the best irregardless of the side effects.
I have really had to be proactive about treatments and medications in recent years. However, with depression and insomnia I have let things like researching medication slide. It's hard to be motivated to research stuff, but then it comes back to bite me in the butt.. like the weight gain. Mental health and other invisible illnesses can be very challenging because we don't have a broken bone to show or "prove" our illnesses. As a Christian, I'm at the point that I'm just looking forward to heaven where there will be no more pain, sickness or sorrow. I am just trying to stay focused on Jesus and get through each day. I know He can heal me instantly but for whatever reason He has chosen not to so far. I try to be grateful for the health that I do have as it can always be worse. A close friend of mine has had Complex Regional Pain Syndrome for 20 years now. She is in off the chart pain 24x7.. and she can't take pain meds. A lot of people in her state are on morphine drips because of the pain or they die by suicide as the pain is so horrific. There's not a cure either. So, I'm very grateful that I'm not in pain, I don't hear or see things that aren't there, I'm not homicidal. So, even though my situation is severe.. I've been on SSDI for several years, I have plenty to be thankful for. I'm not trying to minimize the pain or seriousness of our situation. It's just if it weren't for Jesus I would have been gone a long time ago. I keep reminding myself that this life is temporary, but heaven is for eternity. I will be praying for you.. restored health, peace and joy. I will also pray that in every moment, good days or bad that you would reach out to Jesus. He does love and care for you. The Bible says that He is very close to the brokenhearted. Once you feel and sense His presence.. there's nothing else like it. I don't mean to preach at you. Just wanted to share how I cope with severe depression and insomnia. I certainly understand fatigue.. though I don't have your diagnosis. It's super challenging for me to function with the little sleep I get. You're so right.. the smallest task seems impossible. Keep moving forward.. one breath at a time 🙏🥰🙏

Jump to this post

How long have you been on Mirtazapine

REPLY
@cmd

7.5 mg is usually the dosage for sleep.

Jump to this post

@ cmd - Are you a doctor? Honestly, I am asking you because what the specialist gave me the first time was a higher dose. I noticed that I was terribly hungry all the time and that I had started putting on a lot of weight (which bothered me a lot since I have been slender my entire life and I found it hard to deal with this extra weight). I thought it was a strange concidence and I was the one to tell the doctor that I did not want to use it anymore because I believed Mirtazapine was the cause of my weight gain.

REPLY
@cmd

How long have you been on Mirtazapine

Jump to this post

Oh gosh, I want to say 3-4 years. I've been on so many meds and switched back and forth it's hard to keep up. It was on the Abilify when I started packing on the pounds.

REPLY

Hi everyone. I've been reading a lot of these posts and most are very positive so here I go( I'm sorry if I ramble.....manic right now) I've been talking to a counselor for almost 2 years, along with a psychiatrist once in a while for her just to check in. They still won't diagnose me with bipolar ADHD. At least the psychiatrist won't. My counselor tried but......I was on duloxatine for a year and it just seemed like I was agitated at everything all the time. I had to stop going to most stores because people would just p... me off sooo badly. I'm a kind caring person and my family and friends asked why I was do angry all the time. I weaned off that medication and now not so angry and upset with myself anymore. However, I still get manic episodes all the time but when they end I'm so depressed I don't want to even leave my room ( I have a wonderful daughter who makes me get up and moving and I do because my love for her is overwhelming so.....) I get nervous and nauseous at these times but eventually I bounce back but then it's manic time again. I have rhumatoid arthritis and it's severe in my back knees hands and feet. Just started tremfya 2 weeks ago so I'm hopeful for some relief there. I guess my big question is how do I go about getting the psychiatrist to actually listen to me?? She was a half hour late on one of our telehealth meetings and I ignored her. I was way too angry to talk to her. I asked for a different one but...... I've also asked for different medications but it's all mindfulness....... which I've tied, have a book on it but my brain never shuts up. There's more but I hope someone gets what I'm asking or trying to say or???????? Thanks in advance for any help.

REPLY

I'm so glad you are doing so well on Abilify! I have treatment resistant depression, so I must take several things in addition to Abilify. I had DNA testing to see what would likely work for me. I can honestly say I have not had any bad side effects at all. It seems to fill in the gaps of where the other meds just don't quite do the trick sometimes.

Hoping for great success for you.

REPLY

Abilify caused me to develop Tardive dyskinesia. It is a neurological disorder. Please don’t take it. It causes serious side effects. I have constant mouth and tongue burning plus my voice sounds like I had a stroke. It is awful. Others get terrible movement disorders of their necks, legs and arms. I was never psychotic. Antipsychotics, like Abilify, can cause Tardive dyskinesia. It was used to “augment” my antidepressants. I fired that psychiatrist. He argued with me that only 1% of the population get TD. Well I am that one out of 100. Please do your research. I trusted my doctor u til this happened. It cannot be cured. Don’t take the chance!!!!

REPLY

All Abilify did for me was help me gain well over 250 pounds. I have Severe Treatment Resistant Major Depression and severe insomnia. So far nothing has helped.. ECT, TMS, Spravato or ketamine by injection. Ketamine infusion was a game changer, but I can't find a clinic that does the IV infusion that is covered by insurance. I'm going to have an appointment with Mayo this next week. I'm also trying to get Vagus Nerve Stimulation for depression, but I can't find a neurologist who will do it for depression, only Parkinson's. The future is very dismal.

REPLY
@netter9064

All Abilify did for me was help me gain well over 250 pounds. I have Severe Treatment Resistant Major Depression and severe insomnia. So far nothing has helped.. ECT, TMS, Spravato or ketamine by injection. Ketamine infusion was a game changer, but I can't find a clinic that does the IV infusion that is covered by insurance. I'm going to have an appointment with Mayo this next week. I'm also trying to get Vagus Nerve Stimulation for depression, but I can't find a neurologist who will do it for depression, only Parkinson's. The future is very dismal.

Jump to this post

Dear @netter9064. IT'S SO FRUSTRATING. Everything appears to be inter-related, yet one element/concern is treated as a separate event.
I finally created a chart so I could see the inter-relationship among diagnoses, medications, symptoms,side-effects, ,& meds.
Something remarkable that I was able to achieve: My primary care provider, Endocrinologist & psychiatrist talked among one another:; Patient/professional partnership & Collaboration. They reviewed 2018nresults of Gensite results. Malabsorportion contributed to lack of efficacy and didn't help with Treatment Resistant Depression.
I received my spravato treatment yesterday. I do feel relief of suicidal thoughts .
Brand name meds help w/ variability.
Yesterday, my Miller/ ? DEPRESSIVE Scale was at an all time low: 4.
In 2018, my score was 60.
I have had to advocate for myself and yet maintain a receptive working relationship.
Our doctors are care providers. They need to listen, react accordingly, preferably be proactive rather than reactive.
It is not us against them. It is focusing on Collaboration among Parents, Participants, Professionals and subsequent collaboration.
My uncle had late onset Parkinsons. He shared, "I'm not living on borrowed time. It's bonus time. " he died 1 month short of his 90th b-day. He spent 30 years celebrating bonus time. ❤️
Good luck and keep on truckin'
All for now. Meds kicking it. Want to avoid sleep texting 😴

REPLY
Please sign in or register to post a reply.