Exactly what are Fibromyalgia Symptoms?

Posted by ynwa @ynwa, 3 days ago

I am recently diagnosed with Fibromyalgia and probably like most it was a process of elimination. However I feel lucky in some ways that I was diagnosed with sarcoidosis about 2 years ago and though treatment was effective the doctors noticed the change in symptoms so was told that though the sarcoidosis was in remission the inflammation had triggered Fibromyalgia. Now I am sitting here taking drugs that do not really help, get shooting pains in my arms that in a few hours moves to my legs, have soles of my feet that burn and ache like I been standing all day, get very sensitive skin that also varies in location. Exhaustion and brain slowness. Feeling OK for a few hours then not. I have gone from 2 years ago going to the gym 4 times a week to now gentle stretching or a few minutes of tai-chi result in pain all over particularly knee. Everything is so variable, how much is in my head, how much is Fibromyalgia, how much could be something else?Would love some feedback from some veteran Fibromyalgia sufferers or newbies like me 😉. Thanks. On 150mg Lyrica plus 10mg baclofen in morning and 300mg plus 10mg at night.

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dogloverinfl | @dogloverinfl | 2 days ago

I can sure understand your confusion. I was diagnosed in 2001. I still am not positive what it’s all about. Mine started where I could not walk and my skin hurt everywhere. Certain smells drove me crazy. Sheets touching my skin hurt. Anyone who wanted to hug me got pushed away. I finally had to retire from a business I loved at age 55. I moved to an area where it is relatively warm all the time. It wasn’t long after the move I no longer had brain fog, my ‘skin’ didn’t hurt , I could walk without help and I could give/get hugs. Sheets don’t bother me. Certain smells still do. I’m not sure if it was the lack of stress or the warmth that helped. I have never taken meds. I have been given meds but always get some type of reaction so just don’t bother. I soak in Epsom salt baths when pain gets unbearable. I take turmeric and a few a couple other supplements. I still have areas on my lower back and hip that is off limits for anyone to touch. If I run into something, well it’s not pleasant. So to answer your question, I’m not sure what a flare would be or what is normal. Everyone is different to some degree. If it’s unexplained and everything else has been ruled out I’m thinking that’s it. My triggers have change over the years but maybe from severe to less severe now that I’m retired and I’m not under so much stress. The warmer weather may have something to do with it too, not sure. I try not to dwell on it. I’m just thankful I’m able to enjoy life!
I wish you the best.