I can sure understand your confusion. I was diagnosed in 2001. I still am not positive what it’s all about. Mine started where I could not walk and my skin hurt everywhere. Certain smells drove me crazy. Sheets touching my skin hurt. Anyone who wanted to hug me got pushed away. I finally had to retire from a business I loved at age 55. I moved to an area where it is relatively warm all the time. It wasn’t long after the move I no longer had brain fog, my ‘skin’ didn’t hurt , I could walk without help and I could give/get hugs. Sheets don’t bother me. Certain smells still do. I’m not sure if it was the lack of stress or the warmth that helped. I have never taken meds. I have been given meds but always get some type of reaction so just don’t bother. I soak in Epsom salt baths when pain gets unbearable. I take turmeric and a few a couple other supplements. I still have areas on my lower back and hip that is off limits for anyone to touch. If I run into something, well it’s not pleasant. So to answer your question, I’m not sure what a flare would be or what is normal. Everyone is different to some degree. If it’s unexplained and everything else has been ruled out I’m thinking that’s it. My triggers have change over the years but maybe from severe to less severe now that I’m retired and I’m not under so much stress. The warmer weather may have something to do with it too, not sure. I try not to dwell on it. I’m just thankful I’m able to enjoy life!
I wish you the best.