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Exacerbation symptoms

Posted by picartist @picartist, 4 days ago

I'm 87 and I've read through many posts and what I have come away with is an exacerbation is when you feel worse than the norm with BE. Every day I feel a little tired from the morning on but nothing drastic that a nap won't cure. Some days I cough up more mucus than others and sometimes, not every night, I wake up with nighttime coughs and feel I have to clear to stop it. That's about once every two weeks or so. My question is this an exacerbation when it happens. I would not run to a doctor over it because I don't feel sick. Interested in comments on this because I am thinking about whether or not I need to jump into this new Brinsupri drug that cuts down exacerbations and if I don't have any, why jump into another med?

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Sue, Volunteer Mentor | @sueinmn | 3 days ago

@picartist Here is how pulmonologists eho specialize in treating us define an exacerbation:
https://connect.mayoclinic.org/discussion/how-do-you-define-a-bronchiectasis-exacerbation/
This information is published in a number of places, but this link provided is quite concise.
https://bronchiectasis.com.au/bronchiectasis/management/identifying-an-exacerbation

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picartist | @picartist | 3 days ago
In reply to @sueinmn "@picartist Here is how pulmonologists eho specialize in treating us define an exacerbation: https://connect.mayoclinic.org/discussion/how-do-you-define-a-bronchiectasis-exacerbation/ This information..." + (show)
Profile picture for Sue, Volunteer Mentor @sueinmn

@picartist Here is how pulmonologists eho specialize in treating us define an exacerbation:
https://connect.mayoclinic.org/discussion/how-do-you-define-a-bronchiectasis-exacerbation/
This information is published in a number of places, but this link provided is quite concise.
https://bronchiectasis.com.au/bronchiectasis/management/identifying-an-exacerbation

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Thanks Sue, those are great explanations. I feel better because I don't believe I have had any exacerbations since I was diagnosed a year ago.

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picartist | @picartist | 3 days ago

By the way, bronchiectasis.com is a great webpage. Thanks.

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Sue, Volunteer Mentor | @sueinmn | 3 days ago
In reply to @picartist "Thanks Sue, those are great explanations. I feel better because I don't believe I have had..." + (show)
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Thanks Sue, those are great explanations. I feel better because I don't believe I have had any exacerbations since I was diagnosed a year ago.

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It is all so confusing! My first year, while I was on the "Big 3", I was unaware that I could still have an exacerbation, and ended up with pneumonia. Lesson learned.
I am so happy for all the resources that didn't exist in the past, and happy to be able to share them here.

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kwi | @kwi | 2 days ago

Wow, I wouldn’t have thought you could have an exacerbation while on MAC treatment with the big 3!
Good information to know!

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ellen1234 | @ellen1234 | 2 days ago

I have Mac and bronchictisis and vasculitis and I feel better now after your description of your story. I cope by just thinking of being on a roller coaster and if I’m at the top or roaring down. And so far I always bounce back up so have accepted that I’m going to be ok and not to panic. Thanks for making me feel normal

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