Evenity and breast cancer recurrence

@nwhiker
Dr. Susan Ott is well known and has written books with her thoughts. You shared her name with us in your post.
I am not sure what the problem is, but I will see if I can delete all my replies on here so you feel more comfortable.

@naturegirl5
Please remember that this is in theory only no population studies or controlled studies on patients, but this is where Dr. Ott found the information which concerned her. Plus I never mentioned Dr Ott to the Ai; it mentioned it to me.
I think that this is what you need:
https://pmc.ncbi.nlm.nih.gov/articles/PMC10236625/
In academic research, the link between Evenity (romosozumab) and bone metastases is primarily investigated through its mechanism as a sclerostin inhibitor, which activates the Wnt/β-catenin signaling pathway(https://pmc.ncbi.nlm.nih.gov/articles/PMC10236625/)

Just leave the whole stream intact. I will try to copy the article and send it to my endocrinologist.

@kathleen1314 Thank you. Your first post was confusing and it did look like a quote so this is why I was asking about a source.

I'm very sensitive to where information comes from. When I do research to bring here to Mayo Clinic Connect I usually cite my source by indicating the author (if relevant), title, and the website.

If I do read AI I will go to the primary source if there is something that interests me. Some AI I've read has contained significant errors on the topics where I have knowledge. I don't have enough knowledge on the topic of bones, joints, and osteoporosis to detect such errors which is why I'm very careful.

Thank you for your explanation.

@nwhiker. I'm sorry to hear that you feel you made a poor choice treating osteoporosis with Evenity based on information from your endocrinologist and orthopedic surgeon. Keep in mind they both agreed on this course of treatment based on 1. their medical training and experience and 2. your specific patient history and medical needs, including benefits and risk of fracture.

Please know that they have your best interest in mind. Here's some helpful and encouraging information from Mayo Clinic:
- Osteoporosis treatment: Medications can help https://www.mayoclinic.org/diseases-conditions/osteoporosis/in-depth/osteoporosis-treatment/art-20046869

I suggest using the information shared by fellow members to discuss with your specialists so that you can be confident in your care. Lifestyle approaches like working with a PT really help. However, sometimes lifestyle approaches alone are not enough. Luckily there are medications that can help.

Breaking a hip or your back is something you want to avoid, right? I love my PT and, when remaining consistent, I see improvements overtime. What kind of exercises do you like from your PT? Are you able to do the exercises regularly at home?

@nwhiker, if you would like me to remove or edit your provider's name out of any post, please report it by:
1. Click the 3 dots to the bottom right of the message.
2. Select "Report this comment."
3. Write the reason for your report.
4. Submit.

@kathleen1314
Thank you naturegirl.
This post has been stressful for me. I try to give only good facts and research, and I use Ai to check my facts and make sure that I am being correct in my reply. I just wasn't prepared for the poster's reaction to the facts.
Facts and research don't always make everything better, but I do not want to do anything that makes someone's stress worse.

@kathleen1314 @janna2, AI assistants, like CoPilot, can be helpful when searching for information about your health. When you ask an AI assistant a question or give it a prompt, it looks at the data and then gives back answers or suggestions in plain language. But the information AI assistants give you isn’t always 100% accurate—it depends on the data it was trained on and how your question or prompt was worded. AI tools can sound sure, even when they’re wrong. It's important to fact check.

You may appreciate the guidance and information posted in this blog:
- What is Generative AI? What does this mean on Mayo Clinic Connect? https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/what-is-generative-ai-artificial-intelligence-what-does-this-mean-on-mayo-clinic-connect/

As per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/)
If you share information from AI tools, follow these guidelines:

Share your real-life, first-hand experiences before you add AI content.
- Make conversation with others a priority over AI-generated replies.
- Always fact-check AI content. You are responsible for the accuracy and relevancy of your posts.
- Ask your AI tool to provide sources and citations.
- Include the question (prompt) you asked the AI tool.
- If you use AI, use only short, specific quotes from AI along with your personal experience. Avoid long AI-only posts.
- Be transparent if you use AI text to create your post.

@naturegirl5
I can see where in the maze of words it can be confusing. I am used to reading research papers so it doesn't always play that way for me.

I have tried to not give so much research and hot links because we had another reply that said it was stressing her out. So I try to give enough that anyone can google and find the information and then wait for the request for more. Which you gave.

I love research and will gladly give it all, because I NEVER say anthing that isn't either my personal story or backed up by research.

It is just hard to please everyone. Thank you so much for asking for the research.

Forgive me folks I am not perfect for everyone's likes and needs, but I really try to be, sigh

@colleenyoung
Thanks Colleen, you are talking to the choir; I programmed for several years and was a research librarian and taught research skills.

I am not an AI expert, but I certainly am blessed to know more than most and strive to use AI responsibly. Which is easy to do since AI basically is just a tool to check all research and standard practices. In fact, to not use AI before we post may come to be the irresponsible use of media and eventually I believe that forums like Mayo may in the future recommend that a poster check their facts with AI before posting.

Still, that is in the future, and we are in a learning phase right now.

Thanks for the Community Guidelines, I had not seen those, and Mayo does have guidelines that aren't readily gleaned thru a common sense approach.

I use AI mainly to check my sources and research, unless of course, as here recently when asked about AI.

Ai has the potential to make life for all of us much better, but it depends on how we use it and how it is monitored within our legal system. Given how social media operates now I do have some concerns about how AI can be misused. I have already seen where AI google in particular is starting to refuse to provide information which it freely gave in previous questionings. This was driven by political concerns; that is a concern for me. The action to withhold information when afraid that it might counter political actions. and actually in this case I thought that the answer bolstered a recent Department of Health decision.

So a careful vetting of AI which it seems Mayo is trying to do makes good sense. 🙂