Essential Tremor and High Focused Ultrasound (HIFU)

@lisalucier
Dear Lisa: Thank you for the info on
DAT SCAN.
Q: This article mentioned a Radioactive trader that contains Iodine. I am very allergic to I2. It
doesn't give any alternative nuclear medicine containing Gadolinium
at all.
I am wondering, who can help me w it? I.have essential tremors, which the.Drs think are Parkinson' while some think, its from Chemo
Therapy that.I had.for !y cancer.

I am very sick and tired of all these
Scans and scaredy tactics used by some drs.
I am.on Hospice at age 75 yrs and I don't want to live anymore. Its up to my God, to send me home, whenever God is ready.
Thanks again dear. Hope you are feeling well. May God bless you.
VJ

@vijay26 - if you look in this Davis Phinney information for patients on Parkinson's, you will find:

- DaTscan: What It Is, How It Works, and What It Can Tell Youhttps://davisphinneyfoundation.org/blog/datscan/

What is a DAT scan?

Could someone please explain to me, if it.involved invasive brain procedure?

Please describe it for me in lay man' language.
Thanks.
VJ

@stevelinda my neurosurgeon is referring me to the program before my DBS in July.

I was diagnosed with Parkinson's Disease about 3 1/2 years ago and have a tremor on the left side. I have investigated and am familiar with Guided Ultrasound which would be an option for me in the coming years as my tremor progresses. My doctors are at the University of Pennsylvania (Penn Medicine) in Philadelphia. The Guided Ultrasound destroys a small area in the brain that causes the tremor. This approach is much less risky today given the sophisticated targeting of the area of the brain to be destroyed but it is a permanent procedure that cannot be reversed. The other option for PD patients and perhaps for you is Deep Brain Stimulation where one or two probes are surgically implanted in the brain and then an area of the brain is stimulated with radio frequencies from a pacemaker like device. The procedure is more invasive but once installed it can be adjusted offering many more options for treatment. My wife has had PD for 16 years and had DBS 6 years ago with wonderful success.
Best wishes, Joe

She was going to refer me to Oklahoma City, I believe OSU. If you Google InsighTec, you might be able to find out more.

Where is it available in US?

I'm a newbie here, just starting the journey with Mayo Clinic. I'm not sure if I should be thrilled or terrified.

Essential tremor runs all over my paternal side, affecting me and my siblings, too. It won't be listed as anyone' cause-of-death, but that doesn't make ET "benign"; it messes up so many aspects of your life.

Doing anything is difficult; life becomes a constant struggle to make your hands function well-enough to get you by. But worse, I think, is that these struggles bleed over into your non-ET lift. They undermine your sense of self in an array of subtle but important ways. And, well, poets may wax eloquent about quivering lovers, but this ain't that.

As I said, I'm just beginning this, and am still awaiting key decisions from Mayo Neurology. I'll be lurking this thread to see who else might chime in.

Cheers and good health to all!

@lisalucier Thank you

Also tagging @margm @hopeful33250 @greenway47 @jflamini to see if they have any information on high focused ultrasound for reducing tremors for patients with essential tremor.

@radioactivems - did your doctors determine if you have Parkinson's or essential tremor?

@tedalmon - have you seen or heard anything further on high focused ultrasound for essential tremor?