Essential Thrombocythemia (ET): foods, diet, nutrition?

Posted by azy @azy, May 27, 2023

Hello,
My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow aspiration and biopsy. My platelets are between 600-750. Currently, I’m considered intermediate risk and I'm on 1 low dose aspirin a day, my hemo is talking about 2 aspirins in 3 months. Also, we’ve started talking about chemo.

I’ve been reading up on ET, how it roughly « works » (I’m no doctor LOL) and what I can do to mitigate the tiredness and help my body, especially if I decide to go ahead with the chemo. Which brings me to my questions.

I’m a strong believer in the power of foods and spices, so from what I understand, the spleen and liver are the two organs that are the most affected by a high level of platelets. Am I understanding ET correctly? Has anyone adjusted their diet since their diagnosis? Also, do you know of trustworthy websites where I could find serious nutritional information on the topic?

Thanks a lot! 🙂

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@laurasugargrove

Hi, I live about an hour west of Chicago (and enjoying some unseasonably warm weather right now!) I have found the connections through this (and other) sites has been amazingly helpful. Even compassionate doctors can't help in the same way that our fellow MPN travelers can support us.

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Philadelphia
This site is wonderful!
It’s comforting knowing you’re not the only person with ET.

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@mrkevinl

Did you try the HU?

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I started with Hydrox and now on a combination with Pegasus that seems to be working . Low doses of both ,.

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@mrkevinl

500mg once a day. She didn’t say when I should take it. So I figured after dinner.

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After dinner it’s better but friends from patient to patient

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@hariom1961

After dinner it’s better but friends from patient to patient

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Read depends instead of friends

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@mrkevinl

500mg once a day. She didn’t say when I should take it. So I figured after dinner.

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Just checking in to see how you're doing!

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