Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello,
My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow aspiration and biopsy. My platelets are between 600-750. Currently, I’m considered intermediate risk and I'm on 1 low dose aspirin a day, my hemo is talking about 2 aspirins in 3 months. Also, we’ve started talking about chemo.
I’ve been reading up on ET, how it roughly « works » (I’m no doctor LOL) and what I can do to mitigate the tiredness and help my body, especially if I decide to go ahead with the chemo. Which brings me to my questions.
I’m a strong believer in the power of foods and spices, so from what I understand, the spleen and liver are the two organs that are the most affected by a high level of platelets. Am I understanding ET correctly? Has anyone adjusted their diet since their diagnosis? Also, do you know of trustworthy websites where I could find serious nutritional information on the topic?
Thanks a lot! 🙂
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Philadelphia
This site is wonderful!
It’s comforting knowing you’re not the only person with ET.
I started with Hydrox and now on a combination with Pegasus that seems to be working . Low doses of both ,.
After dinner it’s better but friends from patient to patient
Read depends instead of friends
Just checking in to see how you're doing!