Esophageal Lichen Planus

Posted by petlover777 @petlover777, Jan 28, 2023

Hi. Has anyone in this group been diagnosed with esophageal Lichen Planus.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@knowjo

Haven’t gone yet but plan in 2024 to go to Mayo Rochester Dr Alexander to be treated w dilations to get to 14 mm then learn self dilation (hopefully!)
They want me to have my derm prescribe immuno supp first (cellcept his unofficial rec although i am reading others have found success w methotrexate )

Currently being seen by dr Katzka, esophageal spec at Columbia NYC
He prescribed the budesonide mixed w honey swished and swallowed. (W fluconazole intermittently)

All meds liquid form
Haven’t been able to swallow pills for some time
-Chronically 7-8 mlm :/

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Hello. I recently saw Dr. Katzka in NYC. He prescribed the same: budesonide. Can you tell me how things went a Mayo's and more about Dr. Alexander. Were you happy with Dr. Katzka?

Thanks so much!

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