Esophageal junction outflow obstruction (EGJOO)

Posted by cookierockwell @cookierockwell, Dec 7, 2022

I was recently diagnosed with Esophageal Junction Outflow Obstruction (EGJOO). I was wondering if there was anyone else out there with it.

It's terribly hard for me to eat. I have a bit of breakfast, and a small lunch, and then that's it for the day. Nothing else will 'fit' waiting for everything to go through to my stomach.

I also have esophageal dysmotility, which leaves me with difficulty swallowing, and inhalation of food, pills, and (yuck) stomach acid.

I've also had severe GERD for decades, and at this point, have been prescribed 80mg a day of omeprazole, 40mg a day of famotidine, and 1000mg of alginic acid. Even with all that, I still have to take antacids throughout the day.

I also wonder if anyone else has to take that much omeprazole? I worry about the side effects of the long term use of so much every day, but every gastro I ask about it tells me there's just nothing else I can take. (I have tried all the omeprazole-like meds e.g. pantoprazole etc, as well as Dexilant and Reglan.)

Thanks for reading,

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Hi , I also have EGJOO and Gastroparesis since April 2022 and lost 60 pounds. I am going to NYU Hospital in NYC ( Top 5 in the country) in May to ask for a Laproscopic Heller Myotomy(LHM) with fundoication for the GERD. I also have problems with too much GERD. Today I had breakfast and lunch - 1/2 chicken sandwich. I have bloating, acid, gas & nausea so bad I don’t want to eat, as it will make it worse. I am on Dexilant 60 mg, works about 60% of the time. Did you go to Mayo in Jacksonville? I hope they can help. I live in Punta Gorda, Fl and Mayo will not accept my United Healthcare Medicare Advantage Choice PPO., otherwise; I would have gone. Hope you find a solution I had Botox & dilation and it did not help, so I feel like surgery is the answer.

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Please keep me posted if anything has been successful. I left a comment today. I didn't want to do Botox because it is temporary and dilation did not work. Waiting to talk to my surgeon about options. I weigh 105lb and though I am only 5'1, I am usually 115lb.

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