1. < Digestive Health

Esophageal junction outflow obstruction (EGJOO)

Posted by cookierockwell @cookierockwell, Dec 7, 2022

I was recently diagnosed with Esophageal Junction Outflow Obstruction (EGJOO). I was wondering if there was anyone else out there with it.

It's terribly hard for me to eat. I have a bit of breakfast, and a small lunch, and then that's it for the day. Nothing else will 'fit' waiting for everything to go through to my stomach.

I also have esophageal dysmotility, which leaves me with difficulty swallowing, and inhalation of food, pills, and (yuck) stomach acid.

I've also had severe GERD for decades, and at this point, have been prescribed 80mg a day of omeprazole, 40mg a day of famotidine, and 1000mg of alginic acid. Even with all that, I still have to take antacids throughout the day.

I also wonder if anyone else has to take that much omeprazole? I worry about the side effects of the long term use of so much every day, but every gastro I ask about it tells me there's just nothing else I can take. (I have tried all the omeprazole-like meds e.g. pantoprazole etc, as well as Dexilant and Reglan.)

Thanks for reading,
Cookie

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cookierockwell | @cookierockwell | Dec 12, 2022
In reply to @choosejoy "Cookie, Is there a chance you could be having bile reflux along with the acid reflux?..." + (show)
@choosejoy

Cookie,
Is there a chance you could be having bile reflux along with the acid reflux? For me the omeprazole wasn’t working for my reflux so my GI doc prescribed Colesevelam 2x a day and that has worked better. I don’t have a gallbladder anymore so bile reflux made sense.

I do not have the condition you mentioned but I do have dysphasia so have to get my esophagus dilated yearly.

I hope your appointment at Mayo will help you come to a clear conclusion.

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Yes, it's bile as well as stomach acid.

REPLY
cookierockwell | @cookierockwell | Dec 12, 2022
In reply to @mikaylar "Most times it takes more energy worrying about something than to just deal with it. And,..." + (show)
@mikaylar

Most times it takes more energy worrying about something than to just deal with it. And, pain is part of life, especially as we get older. I will pray for you.

Jump to this post

Thank you for your prayers. I'll pray for you as well.

Cookie

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zozol | @zozol | Jan 26 1:13am
In reply to @cookierockwell "I'm in Florida, and there's a Mayo in Jacksonville. I'm considering going to there for a..." + (show)
@cookierockwell

I'm in Florida, and there's a Mayo in Jacksonville. I'm considering going to there for a consult, but I'm afraid there's not much can be done. I can have a myotomy to open the obstruction so the food will flow down more easily, but that means that the stomach acid will flow upwards more easily. Darned if you do and darned if you don't situation, I'm afraid.

Jump to this post

Never be afraid, I know it’s easier said because, well … hence why I am here myself. (If you haven’t already)
PRAY.

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1 reply
riflemanz64 | @riflemanz64 | Jan 26 6:34am

Do you have Barrett's esophagus from all the reflux?

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1 reply
cookierockwell | @cookierockwell | Jan 26 12:18pm
In reply to @riflemanz64 "Do you have Barrett's esophagus from all the reflux?" + (show)
@riflemanz64

Do you have Barrett's esophagus from all the reflux?

Jump to this post

Yes

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cookierockwell | @cookierockwell | Jan 26 12:19pm
In reply to @zozol "Never be afraid, I know it’s easier said because, well … hence why I am here..." + (show)
@zozol

Never be afraid, I know it’s easier said because, well … hence why I am here myself. (If you haven’t already)
PRAY.

Jump to this post

Thank you so much

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flourface | @flourface | Mar 1 4:58pm

Hi , I also have EGJOO and Gastroparesis since April 2022 and lost 60 pounds. I am going to NYU Hospital in NYC ( Top 5 in the country) in May to ask for a Laproscopic Heller Myotomy(LHM) with fundoication for the GERD. I also have problems with too much GERD. Today I had breakfast and lunch – 1/2 chicken sandwich. I have bloating, acid, gas & nausea so bad I don’t want to eat, as it will make it worse. I am on Dexilant 60 mg, works about 60% of the time. Did you go to Mayo in Jacksonville? I hope they can help. I live in Punta Gorda, Fl and Mayo will not accept my United Healthcare Medicare Advantage Choice PPO., otherwise; I would have gone. Hope you find a solution I had Botox & dilation and it did not help, so I feel like surgery is the answer.

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