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Erosive oral lichen planus
Hello
I'm new to the group. I was diagnosed with erosive lichen planus 4 years ago and it has been a nightmare since. Mine has progressed from my mouth to my esophagus, nose and eyes. I've seen so many doctors @ Vanderbilt and St Thomas Hospital who have no idea how to treat my illness. I've. Even advised to go to the Mayo Clinic in Rochester but I'm really not sure what doctor or doctors have experience with treating this disease. Any help would be appreciated
Thanks
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I cannot believe I have this on top of all my chronic pain. But I do. Now I must find a way through. My acupuncturist recommended this tincture and it feels so good and healing. Check it out it is called Spilanthes
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2 ReactionsI use children’s toothpaste. The 3 pack from Costco. Every other brand I tried was too painful
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2 Reactions@suecutuli But doesn't it contain alcohol, which is not for us OLP sufferers?
@suecutuli YES you are right it does. I am new to OLP -6 months in,
I definitely do not know all the rights and wrongs yet! But this feels good and sometimes that’s all that matters
To me.