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Epidural lipomatosis
Hi I have been diagnosed with Epidural lipomatosis a while ago. I get very depressed some days from the pain. I can't walk or stand much at all! Ya I can't do the things that I love to do. And I'm 59 years old. They say I got it from steroids or being overweight. I wasn't over weight when I got diagnosed but in my 30s I was using a steroids for allergies that I sprayed in my nose . Does anyone have any information for my pain.
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@rknutson03 I wanted to welcome you to Connect. I am a spine surgery patient. I have not had too much use of steroids for asthma, but it is something to be concerned about, and can also be a cause for osteoporosis too. When you can't stand, that makes it hard to get exercise to keep the core strong to help protect the spine. Have you thought about seeing a pain specialist? Would physical therapy help this? My PT does a special method called myofascial release, and what it can do is to loosen the overly tight fascia and tissue in the body with a gentle massage like pressure. That may be able to take pressure off a trouble spot. I have had a lot of relief from this myself. Here is our MFR discussion for more information:
Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
What did your doctor recommend?
I am wondering how your epidural lipomatosis is doing now. I've just recently been dx with it via an MRI before yet another lumbar epidural steroid injection. I am of the opinion that injection should therefore not have been done. So, I've skipped now drs plans to do 6 ablations, in favor of a referral to a neurosurgeon about this epidural lipomatosis. I found some very good information at: https://orthopedicreviews.openmedicalpublishing.org/article/25571-spinal-epidural-lipomatosis-a-comprehensive-review Specifically, on it's pages 24-25, where it explains the best method of diagnosing.