I know what you are going through! I found out in 2019 I have epidural lipomatosis...it has effect my life in the following ways.... walking or standing for any period of time is awful the pain is really bad!! I get this pressure pain/ like cramps in my back that will make you tear up or yell out in pain.... when they found out I had this i wasn't over weight nor using steroids the pain goes down both legs and I also noticed when I lay on my left hip I will have my right side down my hip to my foot I get this numbing falling asleep feeling and if I lay on right side it will do that on my left side... i went to go see a surgeon over this couple years ago..they said loose weight Blah blah blah... i wasn't over weight in the start and now I am! You can do much without this pressure pain in your back... I'm depressed most days... it's really sad you're quality of life is reduced to laying in bed on your side because laying on your back isn't good... to the point you only get up to go to the restroom and that's a challenge most days....so I understand what you are going through! Please feel free to send me an email ask questions maybe I can help answer them...now I have a question for you... my doctor said no more epidural injections because it will make this worse has you doctor say that to you? And what was they say that caused your epidural lipomatosis?