I have had colitis, Ulcerative Colitis and Diverticulitis for years. I am also very prone to C Diff infections. A year ago in December, I became extremely ill and after several months was finally dx’d with EPI and Severe Pancreatitis. Eighty to ninety percent of my pancreas has died. I have lost over 100 pounds. I am malnourished. I am very embarrassed to admit that I must wear diapers in case of breakthrough accidents. I was given Creon and told to take 2 with a meal and 1 with a snack. When I asked my Dr. how big a snack is, she didn’t know. She finally said anything bigger than a slice of bread needs 2 capsules. I eat low fat, but she told me that my system is so fragile, that I should avoid fruits and vegetables unless they are over cooked and the fibers are broken down in them. She also told me Ensure has too much fat, so I can’t have that. I asked to see a nutritionist and was told there are none here. I was very over weight because of meds, so I’m not underweight, but I’m almost there. I weigh 234 pounds and am almost 6 feet tall. I don’t know what to eat or drink, except for water. My Dr. agreed that the only thing keeping me alive was my sugar intake. There are no research hospitals nearby that I can go to for help. Can you please help me? I would be ever so grateful and will try to help the community as I can. I honestly feel if I don’t get some help that I am going to die and I am a fighter. I want to live life to the fullest.
Hi @january1101 and Welcome to Connect. You determination to keep fighting is inspiring in the midst of what must be a difficult time.
I wanted to introduce you to @julie1976 @gaylea1 and @hgarm have all mentioned pancreatitis before and may be able to offer you support as you look for solutions.
@january1101, you mentioned that you can more or less only eat sugars. What all are you eating then? If you have to avoid fat and foods too high in fiber?
Liked by Teresa, Volunteer Mentor
@ethanmcconkey Thank you so much for writing to me. I can't tell you how much I appreciate it. I have been drinking soda and eating carbs or cinnamon rolls. I had less leakage that way. Then when I found out I am malnourished and lacking in several vitamins and minerals, I started drinking water and trying to eat some protein. It makes the diarrhea worse, but I have to have it in my system.
Liked by Ethan McConkey, Moderator
@january1101
I forgot to add that to my amazement, I am not diabetic. My A1C is 5.4.
Liked by Teresa, Volunteer Mentor