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Eosinophilic esophagitis: What treatment helps you?
I was prescribed Pulmacort for this stuff. Started taking it as prescribed despite it being not approved by Medicare or even in the USA, as I understand it. I can hardly get out of bed in the morning due to extreme soreness and pain in my shoulder and hip joints. I have a high tolerance for pain and am not a sissy. I can't work out, play golf or do just about anything. I have quit taking the stuff and hope pain will subside. Anyone out there have similar problem? By the way the price was outrageous but finally got it for $75 /month. Budesanide prescribed for dogs, cats and chickens costs about 5 bucks
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What were your symptoms? Did you have itching without hives on your body?
I’m a 29 year old female that was diagnosed with EoE last year. I’ve had 5 EGDs with dilations & biopsies in the last year. I can’t try the elimination diet because of another diagnosis that prevents me from doing so. I’ve tried PPIs (omeprazole) which didn’t work, tried Budesonide which didn’t work for me either. So, I started Dupixent about a month ago & will find out in July with another EGD & biopsies to see if it’s working to bring my eosinophil count down.
Dupixent by Regeneron is the drug of choice at present. I have been taking it for newly approved use for COPD. Fewer side effects, but I'll wait and see what happens!