Entire left side of body goes numb deep inside.

Posted by pakeemer @pakeemer, Feb 15, 2023

I’ve been discussing this a bit in the hemiplegic migraine area. But I want to take a different approach and just put this out there and see what others may have to offer. The doctors in my area didn’t seem to be of any help, which seems to be very common with what I’m reading here.

So here’s my situation in a nutshell. I am not going to go into all the other various symptoms right now. So what takes place is the entire left side of my bod ,can go numb from the top of my head right down the centerline of my body All the way down to my toes. It’s not a stroke, it’s not a TIA, it’s not MS. Hemiplegic migraine is the only other thing that I’ve come across so far that can cause this. But the doctors in my area give me a blank stare when I even say that word. What I’m wondering is if anyone reading this knows of any other sort of thing that can cause Numbing on one side of the body. I’m somewhat operating as if it’s hemiplegic, although I get no paralysis. I get a lot of other stuff and it’s a frequent daily thing and it just knocks me right down. So aside from all of the other symptoms, is there anything else out there that you are aware of that can cause numbing on one side of the body, deep numbing. I don’t lose the sensation of feel or touch, so it’s not like numbing on the outside.
I am eagerly waiting for responses!

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Good question - one thought:
"When pain and numbness occur in a specific bodily region (like on one side of the body), the most likely culprit are the spinal nerves. In fact, most instances of numbness can be traced back to a nerve issue. The nerves in the spinal column help transmit sensory signals to our body parts from the brain, and vice versa."
-- Pain & Numbness on One Side of Body: https://www.inspiredspine.com/news-blog/2016/june/causes-of-pain-numbness-on-one-side-of-body/.

Another:
--- Numbness on One Side of the Body: Symptoms, Causes, and ...:
https://www.verywellhealth.com/numbness-on-one-side-of-the-body-5525769

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@johnbishop

Good question - one thought:
"When pain and numbness occur in a specific bodily region (like on one side of the body), the most likely culprit are the spinal nerves. In fact, most instances of numbness can be traced back to a nerve issue. The nerves in the spinal column help transmit sensory signals to our body parts from the brain, and vice versa."
-- Pain & Numbness on One Side of Body: https://www.inspiredspine.com/news-blog/2016/june/causes-of-pain-numbness-on-one-side-of-body/.

Another:
--- Numbness on One Side of the Body: Symptoms, Causes, and ...:
https://www.verywellhealth.com/numbness-on-one-side-of-the-body-5525769

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It’s not spinal that’s been already ruled out because as I mentioned, the numbness is all the way to the tip of my head. In the very top of your head is not affected by spinal. So the doctors in my area say so anyway.

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@pakeemer

It’s not spinal that’s been already ruled out because as I mentioned, the numbness is all the way to the tip of my head. In the very top of your head is not affected by spinal. So the doctors in my area say so anyway.

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I don’t want to be quick to rule things out though, so is there something you know about the set the other doctors don’t seem to grasp?

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@johnbishop

Good question - one thought:
"When pain and numbness occur in a specific bodily region (like on one side of the body), the most likely culprit are the spinal nerves. In fact, most instances of numbness can be traced back to a nerve issue. The nerves in the spinal column help transmit sensory signals to our body parts from the brain, and vice versa."
-- Pain & Numbness on One Side of Body: https://www.inspiredspine.com/news-blog/2016/june/causes-of-pain-numbness-on-one-side-of-body/.

Another:
--- Numbness on One Side of the Body: Symptoms, Causes, and ...:
https://www.verywellhealth.com/numbness-on-one-side-of-the-body-5525769

Jump to this post

I’m sorry, there is so much more going on and so much stuff has taken place in the last four years. I should’ve responded to your response with a bit more information. On April 6 of 2021 I went into emergency. While I was in emergency, I asked them if they saw the MRIs of my cervical area in my lumbar area. They reviewed them and said that is not the issue. Basically they said there’s nothing they can do at the hospital, they can find nothing wrong. They took extensive blood test, so many that the person drawing the blood said he’s never seen so many test ordered before. I was scheduled for an EEG and I also had a four hour psychoneurological exam. On top of all the other little things, heart rhythm, assessment, etc. etc. so they ruled out spinal they ruled out a stroke they ruled out TIA they ruled out MS they ruled out seizures , they ruled out out heart issues. Then I think they passed the buck and released me.

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@pakeemer

I’m sorry, there is so much more going on and so much stuff has taken place in the last four years. I should’ve responded to your response with a bit more information. On April 6 of 2021 I went into emergency. While I was in emergency, I asked them if they saw the MRIs of my cervical area in my lumbar area. They reviewed them and said that is not the issue. Basically they said there’s nothing they can do at the hospital, they can find nothing wrong. They took extensive blood test, so many that the person drawing the blood said he’s never seen so many test ordered before. I was scheduled for an EEG and I also had a four hour psychoneurological exam. On top of all the other little things, heart rhythm, assessment, etc. etc. so they ruled out spinal they ruled out a stroke they ruled out TIA they ruled out MS they ruled out seizures , they ruled out out heart issues. Then I think they passed the buck and released me.

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If I didn't misunderstand what you said above, the one sided numbness feeling occurs after or around the same time as the migraine you mentioned? Just wondering if there is a correlation between the two. I know you've seen a lot of different doctors but have you thought about seeking help or a second opinion at a teaching hospital or major health facility?

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@johnbishop

If I didn't misunderstand what you said above, the one sided numbness feeling occurs after or around the same time as the migraine you mentioned? Just wondering if there is a correlation between the two. I know you've seen a lot of different doctors but have you thought about seeking help or a second opinion at a teaching hospital or major health facility?

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In December 2021 I checked into the mayo clinic and the Cleveland clinic. Neither of them were excepting applications at that time until 2023. I’m not sure if the situation has changed at all. Being on the mayo connect site I guess is kind of a step forward into seeking more help. I’m located in Grand Rapids Michigan, and we have what is called the medical mile. And we have other facilities hospitals. But my experience through this for years has been it’s nothing but run-of-the-mill healthcare. we do have the Betsey DeVos, Children’s Hospital, which I am assuming is much more than just a regular hospital so I will give our healthcare in this area that much credit. Perhaps you can tell from this letter that I’m disgusted with the healthcare in this area. I don’t know where to go for people that are willing and able to dig into a health issue. That’s why I’m reaching out here on this website to see where that takes me. I don’t get migraine headaches I guess that’s what’s called a silent migraine. The numbness on one side is just one of many intense symptoms.

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@johnbishop

If I didn't misunderstand what you said above, the one sided numbness feeling occurs after or around the same time as the migraine you mentioned? Just wondering if there is a correlation between the two. I know you've seen a lot of different doctors but have you thought about seeking help or a second opinion at a teaching hospital or major health facility?

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I’m sorry I didn’t answer your question about the correlation between the two. They’re all connected. Everything I hear of us connected the numbing and tingling head to toe the internal vibrating, the complete body numbness from head to toe. The ringing of the ears is sensitivity. They’re all part of the episodes, I can’t look at a computer or the telephone without it causing an episode so it seems. Right now I’m speaking into the phone with my eyes closed so I don’t see what’s taking place. Sometimes I go back and correct it sometimes I just have to let it lay the way it turns out by speaking because scrolling too much I believe causes an episode the next day. I am not gonna go back and look at this letter so if it’s not legible or understandable, I apologize.

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@pakeemer I'm just sharing something similar my mother had in 1970 at 37 years old. She's gone and I was only 11 so I can't provide more detail than this. She had one side of her body go numb and had a headache at the same time. Both lasted for 8 months non-stop. She spent a week in the hospital undergoing every type of test looking for a brain tumor, stroke, other neurological disorder and who know what else. In the end, they determined it was caused by stress. They could not find a physical cause. She was under a lot of stress at the time. It went away after 8 months (long time), but she never had an issue with it again even during times of great stress. Was it really just stress? Who knows, but I'm hoping to at least give you hope that it may go away at some point forever. She lived to be 84, had great general health, perfect labs and never took meds. Wishing you the best.

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@californiazebra

@pakeemer I'm just sharing something similar my mother had in 1970 at 37 years old. She's gone and I was only 11 so I can't provide more detail than this. She had one side of her body go numb and had a headache at the same time. Both lasted for 8 months non-stop. She spent a week in the hospital undergoing every type of test looking for a brain tumor, stroke, other neurological disorder and who know what else. In the end, they determined it was caused by stress. They could not find a physical cause. She was under a lot of stress at the time. It went away after 8 months (long time), but she never had an issue with it again even during times of great stress. Was it really just stress? Who knows, but I'm hoping to at least give you hope that it may go away at some point forever. She lived to be 84, had great general health, perfect labs and never took meds. Wishing you the best.

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Thank you so much for your letter. I have so much to say but not up to it right now and not really feeling like filling up this board with so many details.
I just wanted to be sure you know that I appreciate that you thought enough to take the time to acknowledge me and my “affliction”.

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