Endometrial cancer at a late age

I too had complete hysterectomy at 68 by robotic for grade 1 stage 1 endometrial cancer. Healed very well with very little pain. In June had my last every 6 months check up and so far so good. You will do well, just take it slow and easy to allow yourself to heal from the inside out.

I love this site and appreciate the women who are sharing their experiences. It is so helpful. The sisterhood of the Big C!

i think a lot of this depends on how good 'shape' you are in. i was 73 and had an open hysterectomy (all my female bits plus omentum and appendix). ended up in the hospital for about 6 nights but i think this was mostly because they kept me so drugged up; when i realized that i could tell them to stop some of the drugs, i was in a lot better shape. really no pain although i had sutures from chest down to nether regions. I was out walking a few days after surgery, although I took my seat walker in case i needed to sit (i never did). also since i had been thru back surgery a year before, i knew about things like moving my dishes on the countertop (difficult to bend, reach), buying reachers....

also the oncologist kept telling me that all people respond to chemo differently. that turned out to be true. i had no problems at all, except for constipation and then diarrhea but since my cancer was so aggressive (serous endometrial stage 4B) i really had no choice. i had never thought i'd go thru chemo. cancer free currently (9 months post-surgery) but this is aggressive, so.... i was able to get my third chemo and flew to japan the next day. the support staff hated that i was traveling but i just masked up. After the first chemo i just waited about for something to happen (fatigue, neuropathy, hair loss) but except for the hair loss nothing happened. They DID reduce my dosage of taxol for the first chemo, however. you could just see what happens after the first although it means losing your hair.....
When you don't have data, which is EXTREMELY difficult to get (chemo vs no chemo???) it is a very tough decision. I'm glad i did it, butd then i'm probably abnormal in not having chemo problems. I DID get two coolers and use them on my feet, however, as the ability to walk is EXTREMELY important to me. 8 hours of infusion is pretty boring.....

If diagnose with Endometrial cancer. should the doctor start giving the treatment or the patience must wait until all the other exam was done like exam if it spread to other part of the body.

I had a laproscopic total hysterectomy at age 73 for stage 1A serous endometrial cancer. I stayed overnight although I didn't have to. practically no pain just some minor discomfort. I walked around the hospital floor 3 or 4 times after the surgery as I read that by doing so I would not experience the bloating and pain of gas that occurs when there is abdominal surgery. it was the best thing I could have done ! absolutely no pain at all from gas or bloating. I was out walking my dog 4 days later.....For me the surgery was very easy and I was told by my surgeon that the cancer had not spread to any lymph nodes so all good. Unfortunately the cancer is rare and aggressive and has recurred twice since the surgery...my last scan ( July 2025) was NED so the treatment I am undergoing ( enhertu) is working !

Thank you all for responding to my question. The responses were very helpful and hopefully I will have an easy time of healing like some of you had. 🥰👍

Good Morning ladies....just an update on my current treatment for serous uterine cancer stahe 1A....I have been on infusions ( 30 min) of a drug called enhertu, which is a targeted chemo combined with traztuzamab, (herceptin) which identifies the protein in HER 2 + cancer. My first infusion was in May 2025 and continued every 3 weeks. As my CA 125 went from 77 to 15 I've been able to have the treatment every 4 weeks instead of every 3 weeks. Enhertu was approved by the FDA for uterine cancer in August 2024, has been used for breast cancer treatment for many years. It has fewer side effects than carboplatin ans taxol. I have lost hair but not all, just getting thinner, the 2 or 3 days after the steroids wear off there is some afternoon fatigue and appetite a little off. I have been able to continue with my pilates class 4 times a week and my weekly pickleball game as well as 4 mile walks withe my dog. Not much Chemo fog ..all in all an easier drug to tolerate. I did very well with the harsher chemo, but is was long ( 4 hours) and losing all my hair was a drag...The best news is that my most recent scan ( yesterday November 8th ) was NED !! the enhertu is working with at 4 week intervals instead of 3 !! I remain hopeful and very grateful for the wonderful quality of life that I have been able to maintain during this journey that I never expected to be on !! Good luck to everyone and don't be afraid of treatments that can fight this demon, I'm grateful that they exist !

@alohman08 Congratulations on all of these achievements. I'm very happy that the enhertu is working for you and that your most recent CT showed no NED. This is such good news. Thank you also for reminding all of us that we can live our lives with cancer, with treatments and be active. You are an inspiration!

@alohman08
I too have had great results with enhertu. I've been on it for 10 months, with infusions every three weeks. I have stage IIIC1 serous cell endometrial cancer, and was initially put on carboplatin and paclitaxel. The cancer returned 4 months later and in new regions. Was advised to go on a clinical trial and now, after 10 months on enhertu, I am showing a complete response.Yes, I lost most of my hair, but it is growing back now.
This is very good news, given my cancer type and stage. And I encourage those to try the treatment.

@alohman08 I was diagnosed with the same cancer at same stage. I then learned that Stage 1a is broad. Do you mind sharing how much spread they found beyond the uterine lining? Was it in the muscular layer of your uteris? I ask because I was going to start chemo but 2 doctors said "wait and see" was best for me. Scary, cause all it takes is one rogue cell.