Suspected Endometrial Cancer: Cervix won't open to do biopsy

@cargirl11

Hi...absolutely just insist on a total hysterectomy with BSO. I had breast cancer Stage 1A in 2015. I took Tamoxifen for 58 months and had "one spot" - didn't even look like blood. My GYN did the ultrasound and sure enough the endometrium was extremely high @ 14.
That day, mind you just 8 weeks short of 5 years Tamoxifen, I stopped of course. I ASKED FOR A HYSTERECTOMY. I was 69 at the time. The GYN and my Breast Oncologist decided that I should be followed. They both agreed a hysterectomy at that point was "cutting off your hand for a hang nail ". I was followed closely - twice a year for 3 years with an ultrasound every time. I also had several hysteroscopies in the office - none of them were successful and offered no real findings of use. Never ever had another symptom and was put on Anastrozle after the Tamoxifen. Jump to 4 years later and a PAP test showed atypical cells. At that point I said: "that's it - send me to a gynecological surgical oncologist today!" The GYN set it up while I was in his office. Long story in short - the oncologist agreed that anything less than a hysterectomy would be
useless. Now age 73 I had a Total Hysterectomy with BSO and Lymphadenectomy.
By the way it was done robotically as an outpatient...honestly it was easier than a dental appointment!
I never took anything for pain and was 100% a week later. They found 1 small polyp.
However it is Clear Cell Carcinoma - a very aggressive and only @5% of endometrial cancer is Clear Cell.
Because of the very low percentage there is very little info and there has never been a clinical trial only for this - it has been included in some trials but not specific to Cleat Cell. I am very lucky so far. I am Stage 1a however with a grade 2 pathology.
After the healing from surgery because of the Grade 2 clear cell, it was recommended that I have radiation.
I had 5 treatments of Brachytherapy to the vaginal cuff that is left after surgery. It's been 13 months and both my radiation oncologist and gynecological surgeon oncologist found everything to be okay.
I see them both every 3 months. And the blood test for CA-125 ( cancer marker for ovarian cancer) has been very low. My breast oncologist never explained or warned about the Tamoxifen associated endometrial cancer. It's 1 in 500 cases. They routinely don't to the ultrasound either. With my history of breast cancer, using Tamoxifen for 5 years, my age... all suggest a hysterectomy would have been reasonable when I asked. 4 years later I insisted - however did indeed develop uterine cancer and Tamoxifen is associated with high grade pathology, usually not the endrometriod common diagnosis.
I sure hope this helps you. Stand your ground. Be your own advocate or bring along one. If you have questions please feel free to contact me! 😊