Elevated Platelet Count With Extreme Fatigue

Hi,
I’ve been diagnosed with high platelets, but not Thrombocytosis. They have bounced around from 460-580’s for the past two years. My GP caught this and have been keeping an eye on them until last year when I was referred to an oncologist. They ran all the tests, no gene mutation, iron was on the low side of normal, ferritin also on the low side of normal, and no autoimmune flags. I have a very physical job, so my inflammation is always higher than normal. I told him I’m bruising very easily, getting daily headaches, and have severe fatigue.. He basically said I’m fine and to come back in a year.

I decided to get a second opinion. I was put on iron supplements which did not work, so I had two iron transfusions. Numbers are normal now, but I’m still super fatigued. My GP said I should have been bouncing off the walls after both transfusions, but I went home to nap. So, she ran more tests. Spleen is normal, abdominal ultrasounds are normal, and sleep apnea test was normal. No one can figure out where my fatigue is coming from.

The fatigue is so bad that I’m napping on my days off, nodding off while sitting at a computer, in the shower, and during meetings. My family lives in another state, and I can no longer drive home because it’s so hard to stay awake while driving.

I’ve tried everything. My body feels so heavy and drained. I contacted my hematologist and she said she doesn’t believe it’s blood related. I’m at a complete loss on what to do next. I don’t want to create something that isn’t there, but I’m having a hard time coping. Has anyone else experienced this type of fatigue, and has anything helped. Any information is greatly appreciated.

~Kelli