Effect of long car rides on PMR

Posted by christopherc @christopherc, Sep 16 8:27am

I’ve noticed for almost as long as I’ve had PMR, which is close to two years that long car rides seem to exacerbate it even when I stop and get out and stretch and walk, roughly once an hour. Whenever I take a car ride of an hour or longer my stiffness and muscle soreness get worse and I seem to suffer headaches and a general fatigue and malaise for the rest of the day.

I was wondering whether others experienced this and if anybody has any kind of explanation for why occurs.

Thanks and I wish you all well and coping with this confounding disease.

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@deniseinca

Cars are the worst! We have a cabin 3 hrs from our home and by the time we arrive i need to stabilize against the door when i get out of the car as my legs simply do not work. I buckled once and landed on the ground so take it slowly since then, i find it can be bad even driving to the shops. I travel to the cabin with my family our dogs and cat so do not like to delay for everyone's comfort but also because 1 hr or 3 hrs it is going to be bad anyway!
Thank you everyone for this thread i had not even spoken to my doctor about this and now i can feel a little better knowing it is normal for this condition!

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Sitting less than hour hurts too, hard to get out from the car

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@malin70

Sitting less than hour hurts too, hard to get out from the car

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I agree even shopping is difficult, i made the 3 hr return from the cabin today it took a while to balance once out of the car and now 4 hrs later i am beat, so tired and fatigue is horrid. If i could post a picture of my lake front cottage view it would help in understanding why i make the trip even though it is painful!

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you got it….car rides are terrible and require lots of stretching stop and if it wasn't for cruise control, my right leg would drop off from the pain. Getting out of bed not easy either. Seems the less you move, the more pain you get. Just terrible that medicine knows so very little about PMR. That I just don't understand. take care, Ira

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@malin70

Sitting less than hour hurts too, hard to get out from the car

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Also, even watching television, etc.

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@tillysam

Also, even watching television, etc.

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For sure

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@sue16833

Every case is different, for me any long ride, even today in remission, is a challenge. I’m currently not on any prednisone. I feel the loss of range of motion coupled with the muscle atrophy, while very sick, helps me to understand the pain and my desire to slowly get my fitness back. Take time and don’t push but don’t give up on regaining your fitness. Again, everyone is different.

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I agree as I’m 18 months into remission and this is the last symptom to diminish. But it has reduced so there is hope and some days it feels nearly normal.
I walk every day slowly with the dog and this has definitely improved my fitness and wellbeing.

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