1. < Gynecologic Cancers

edometrial cancer returns

Posted by cookercooker @cookercooker, Dec 16 8:12pm

I mentioned earlier that I was bleeding and it turns out that either the cancer returned or has progressed. My thoughts not the oncologist's. He says it has recurred. Don't know what the difference really means.
Anyway, the cancer was found in the vaginal vault, a place where the surgeon couldn't get to it during the hysterectomy.
Will be irradiated for that area to stop the bleeding and pain, but was informed that it will be mild enough not to arrest the cancer.
Future steps involve having another gyny. oncologist checking me out, a radiation doctor performing the minimal radiation procedure, and then a full body CT scan. Once the data are in my oncologist will re-stage my cancer.
Depending on the outcome, I will either take part in in a clinical study involve ENHERTU or Len Pem.
This waiting is frustrating and unnerving. It's been over 14 months being in limbo.

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gynosaur42 | @gynosaur42 | 18 hours ago
In reply to @madieblue "I finished chemo in 2022 and been on Keytruda maintenance since. I'm seeing ophthalmologist on January..." + (show)
@madieblue

I finished chemo in 2022 and been on Keytruda maintenance since.
I'm seeing ophthalmologist on January 10 and will let you know how it goes.
Thank you for caring.

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@madieblue

If I’m understanding correctly, “so far so good” after a CT scan means that you’ve been told that no evidence of cancer was found, and that continuing on Keytruda for maintenance is still the plan.
I am wondering whether the CT was done before or after the vision challenges showed up. When new symptoms crop up, the question that often arises in the back of my head is whether this represents a recurrence, a metastasis, a side effect of the treatment or something completely unrelated that may be due to aging, to genetics, to benign but annoying growth, a new cancer emerging, exposure to a microbe or other toxin, etc. It’s a heavy thing to hold so many possibilities as a result of one set of symptoms and truly reflects what it is to be surviving cancer. I send hugs.

I do hope the CT results are reassuring and that your ophthalmologist can give you clarity and suggest a plan that takes you toward reliably clearer vision. Wishing you well with this! Thank you for sharing, as it gives me data points for a possible path on my journey.

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | 15 hours ago
In reply to @cookercooker "Thanks for that support. I went into the cancer centre this afternoon and requested information about..." + (show)
@cookercooker

Thanks for that support. I went into the cancer centre this afternoon and requested information about my schedule from the receptionists--I call them the 'gate keepers'. They were i a flurry phoning scheduling and the oncologist's secretary et al. When I got home I got a call from the centre giving me a date with the radiologist. Although it's still two weeks away I felt victorious. Just call me the squeaky wheel.

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@cookercooker Squeaky wheel. Yes!!! ✊ (pumping my fist in solidarity with you). We are all sisters in this journey and when one of us moves ahead we all celebrate in victory.

May your squeaky wheel continue into the coming year.

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