Has anyone heard of, or had an Echolight sonogram scan instead of a radiation DEXA scan? New FDA approved that has been used in Europe for awhile. https://www.echolightmedical.com/en/company/
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My sister told me that a doctor was having an Ecolight event at Kripalu and she was trying to book an appointment. I found a web page where Ecolight announces a NYC branch to be opened that will serve as a national hub. There's a web form to contact the company, so maybe messaging to find local doctors will work. Hopefully they'll post a database for us once the NYC branch is up and running. https://www.echolightmedical.com/en/usa-office/
Thank you so much! I wish it was offered here in Florida but so far it’s not.
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I’m hearing they may be getting one around the Tampa or Sarasota area. You could check with the company. Right now the closest is in NC. I had it done in NJ.
Can you please tell me where you had the Echolight (Rems) performed.
Carolina Orthopedic in Sanford S. Carolina
I haven't heard of that, @csday. Do you know if the results of the Sonogram conflict with the dexa scan results? The trabecular bone score (TBS) is supposed to give a more accurate reading as it focuses on bone quality, not quantity, but I don't know where that is available and would love to hear from anyone who had one.
Trabecular score only measures fragility in the spine. Echolight measures hip and spine.
It's been hard finding a facility that does the TBS/DEXA and/or echolight in Florida. I would really like to have either one before making a decision on meds. It's sad we're not more advanced with equipment to help determine fragility fracture risks before being thrown on meds.
@adr, this connection is amazing here, I so agree! I'm learning something all the time .
I, too, have been trying to find a facility in Florida. I live in Orlando.
I messaged Echolight (via "contact us" on their website) and they responded stating there is a facility in Tampa:
USF Health Informatics Institute.
The telephone number provided was a general USF Health phone number and the operator could not help me. I went to the USF Health Informatics Institute website and tried to contact a staff member by email. I have not received a response, and it has been over a week. I am convinced that my DEXA scores are either inaccurate or incomplete and would like a second/different test.
I feel the same way about my Dexascan scores and would love to try something new or updated. Let us know if you have any luck. I also live in Florida.
Hi Penny, I'm going to keep searching on the echolight, and ty for your information. I'm still at a loss as to why this disease seems/is neglected and under prioritised.
What I did find was a place for the added TBS:
Vero Beach Radiology Assoc.
I just spent about an hour on the phone with USF Health with no results.
The website for USF Osteoporosis program mentions the REMS technology, but when I spoke to the scheduler for that department, I was told that they do not have such a machine. The scheduler placed me on hold to check with radiology and was told they do not have the machine. Very curious and disappointing.
I do not drive long distances from Orlando (but could take a train to Tampa). Vero Beach is way too far for me to drive. Thanks for the information however.
Unfortunately, I was unable to post a link to the USF Osteoporosis program. FYI key words Diabetes and Endochronolgy; Calcium and Bone Disorders.
I phoned Vero Radiology (Cleveland Clinic) and after being transferred several times, I spoke to a woman in the actual facility. The woman had to check and informed me that the facility has a "new" machine (about a year old) but it is not Echolight, but Hologic. I googled Hologic and learned Hologic is a new version of DXA. I will keep trying. I have an appointment with my osteoporosis "specialist" doctor in Orlando next week and maybe she can help (instead of prescribing drugs with awful side effects).
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