ear pain and intermittent throat pain

Posted by vickieb876 @vickieb876, Jan 6, 2019

I am currently diagnosed with trigeminal neuralgia. I have had ear pain since 1995. I also have a glossopharyngeal cyst. More recently I have had pains in my throat, which does not coincide with the ear pain. I do have inner ear pain when I swallow, and talk. . Also bouts of tenderness on my scalp. .A few years back I had a ACDF for Klippel-Feil Syndrome. I am wondering now if I have been diagnosed incorrectly as I understand that happens frequently. Any insight would be appreciated.

@amandabanana80

The doctor suggested that it could be TMJ pain and prescribed me Naproxen to help with pain and inflammation. He also gave me a list of jaw exercises to do. So I've been doing that for almost a week and the ear pain is feeling a bit better, but it is still there. I'm going to wait another week and see how it feels then, but I might go back in and ask him about the Eagle's syndrome and see what he says.

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@amandabanana80– Good morning and welcome to Mayo Connect. I had a very bad case of TMJ in both jaws. I even went to a special PT lady for it. It takes much longer than a week for those exercises to help and work. They are like beginning weight training and expecting to see huge muscles the next day. The pain caused by TMJ is due to inflammation and that has to abate too. And it takes time to heal! I think that I am way too quick in judging if a medicine will work if I don't get instant relief. TMJ doesn't happen overnight and it takes a while for everything to heal. Some people keep these exercises up for years. Have you considered getting a night guard?

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@amandabanana80

I just wanted to update that I have been taking the Naproxen and I'm almost done with it and the ear pain isn't as strong as it was, but I'm still feeling it. I'm thinking the doctor might have misdiagnosed me because lately I've been noticing that if I'm outside and the wind is blowing, the ear pain gets stronger when the wind blows through my ear. I have also started experiencing pain in my jaw and actually went to the dentist last week because I thought there was something wrong with my teeth on the lower left side, but the dentist did an xray and didn't see anything wrong. It also continues to hurt underneath my left jaw so at this point I'm really stumped as to what could be going on. I am in the midst of switching doctors so hopefully in the next couple of weeks I will get in to see a new doctor and talk to her about all of these issues.

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Hello @amandabanana80 I have had surgery for Eagles Syndrome. It took me a year and a half to get my diagnosis. My styloids were elongated and the ligaments that extend to the hyoid bone were also calcified on both sides so I had a necklace of bone. My left side was the one that was removed and I am hoping that the right side will not become symptomatic. Are you in Minnesota or another state? The website Bens Friends is also a very good resource for many who are living with Eagles syndrome. I was seen by my family dr., dentist, oral surgeon and finally was able to get a diagnosis by getting a CT scan in the ER. The radiologist is the one who diagnosed me. The ENT's in the area said they had only read about it in the medical books and never met anyone who actually had it. I believe in MN there are 2 surgeons that have done this operation. Best of luck to you!

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@amandabanana80

I just wanted to update that I have been taking the Naproxen and I'm almost done with it and the ear pain isn't as strong as it was, but I'm still feeling it. I'm thinking the doctor might have misdiagnosed me because lately I've been noticing that if I'm outside and the wind is blowing, the ear pain gets stronger when the wind blows through my ear. I have also started experiencing pain in my jaw and actually went to the dentist last week because I thought there was something wrong with my teeth on the lower left side, but the dentist did an xray and didn't see anything wrong. It also continues to hurt underneath my left jaw so at this point I'm really stumped as to what could be going on. I am in the midst of switching doctors so hopefully in the next couple of weeks I will get in to see a new doctor and talk to her about all of these issues.

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Hi, @amandabanana80 – how are you doing? Have you been able to get an appointment with a new doctor?

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