Connect
Eagle Syndrome
My son was diagnosed with Eagle Syndrome. It took years of him complaining to Dentists and Doctors before it was diagnosed. Finally a Dr referred him too the Cleveland Clinic. They were able to diagnose it, but didn't have a Dr on staff that could offer any advice. Being that Eagle syndrome is so rare less than 4% percent have this condition and of that 0.16% show symptoms.
We found a couple of Dr's who have treated the condition. But they claim the surgery is horrible they found it creates more issues. That to hold off as long as a person can.
It is very painful at times for my son. He said right now, he can feel the Styloid pressing on his Hyloid bone.
Does Mayo Clinic have any studies or Dr's that deal with Eagles Syndrome?
Like
Helpful
HugInterested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.
Connect
My husband was diagnosed with eagles syndrome. He had surgery to file down the styloid (?) The bones in the back of your mouth, and he still has severe poking and getting bad headaches. Who is this Dr in Idaho? What other surgery is there besides the styloid one?
Welcome @corinn, Hopefully @marjana can respond to your question of who the doctor was in Idaho that did the styloidectomy, Here is more information on the procedure.
Eagle’s Syndrome: A New Surgical Technique for Styloidectomy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4379291/
Did your husband go back to the doctor that performed the procedure to see if there was a problem or something else was missed?
-
Like -
Helpful -
Hug
1 ReactionHello. I have classic eagle syndrome. Any surgeons that deal with this in Chicago area?
Welcome @boofinley, Here's a link I found that lists doctos that have treated Eagle Syndrome.
-- Discussion: US Doctors Familiar With ES -- https://forum.livingwitheagle.org/t/discussion-us-doctors-familiar-with-es/4752
Are you thinking of having surgery?
Would like to get evaluated for it
Is there a consensus who are the nation's top surgeons for Eagle Syndrome?
@boofinley, I think @marjana may be able to provide a doctors name for you if you didn't find one in the link I provided in my last response to you. Here's the link again -
— Discussion: US Doctors Familiar With ES — https://forum.livingwitheagle.org/t/discussion-us-doctors-familiar-with-es/4752
-
Like -
Helpful -
Hug
2 ReactionsYes I see two in Illinois. My question is different. Like who is considered the national expert on Eagle Syndrome. Who has done the most surgeries. Who is a pioneer in new surgeries?
That's a question I wished I could answer the question for you. Here's a video of a patient who had the surgery with a link to the surgeon's site.
https://youtu.be/aAuJZpYWy8c
-
Like -
Helpful -
Hug
1 ReactionHey! I’m in medina ny! I was just diagnosed and having the same issue finding someone! It’s a nightmare! Have you made any headway with finding anyone?