Duration of Severe Pain Following Robot Assisted Upper Left Lobectomy

Posted by steveskolnick @steveskolnick, Jun 30, 2023

Question = How long should I expect to be in severe pain which is requiring me to take 2 different opioids for pain management?
Details:
Adenocarcinoma in upper left lobe - 2 tumors of sizes 4 x 3 x 2.5 cm and 1.3 x 0.8 cm and infected intraparenchymal lymph node
Surgery was June 21.
I have to have pancreas surgery (Whipple procedure) once I am healed enough so I am just interested in how others have done with the lobectomy.
Thank you in advance for your reply.

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@merpreb

Vic- That's a great observation. I have just sent the term to my radiologist to see what he says about STAS. I forgot the term when I saw him. After my lengthy journey with lung cancer, there is no staging. We go from one nodule or gg to another. I do have three places that they are keeping an eye on, but for now, stable is the word. And I love it.

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Yes "stable" is good. I can't wait.
I found the following - which explains some. If you haven't had surgery since STAS became official, your pathology report would not indicate it I suspect. WHO only made it official as a means of cancer spread in 2015. So then pathology reports started to carry that info.

Spread Through Air Spaces (STAS) in Lung Cancer: A Multiple-Perspective and Update Review Published 23 April 2020 Volume 2020:12 Pages 2743—27 Dovepress
Conclusion:
Above all, in this review, we comprehensively summarized current discoveries concerning STAS from multiple perspectives. STAS is a conspicuous spreading phenomenon of lung cancers indicating worse prognosis; nevertheless, the treatment strategy for patients with STAS remains to be discussed. Further studies are needed to elaborate whether a STAS-positive patient who underwent limited resection needs a second operation or postoperative adjuvant treatment. Meanwhile, although the nutrition resource has been studied, the internal mechanism of STAS formation is largely undiscovered. Whether the capability of detachment-migration-reattachment in STAS tumor cells is achieved at the time of primary tumorigenesis or in the progress of tumor development needs to be studied, and the related signal pathways or genetic alterations need to be explored. With this information, it may be possible to improve the prognosis of patients with STAS-positive lung cancers.

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On third year of pain. Fractured rib and damage to intercostal muscle and nerve. PET scan showed scar tissue had formed around nerve. Set to visit with pain specialist at next cancer ck up mid August as to potential solutions to mitigate pain levels - currently only on Gabapentin and
Celebrex .

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I hope I am not testing fate, but after 8 weeks from surgery, my nerve pain has gotten better.
I was taking 900mg of Gabapentin but a day, but I reduced to 600mg five days ago. I currently have "scratchy" skin in front which is annoying but not as bad as those sharp jabs before. Also "numbness" but that is also not a problem. I plan to reduce to 300mg a day next week.

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@vic83

Yes "stable" is good. I can't wait.
I found the following - which explains some. If you haven't had surgery since STAS became official, your pathology report would not indicate it I suspect. WHO only made it official as a means of cancer spread in 2015. So then pathology reports started to carry that info.

Spread Through Air Spaces (STAS) in Lung Cancer: A Multiple-Perspective and Update Review Published 23 April 2020 Volume 2020:12 Pages 2743—27 Dovepress
Conclusion:
Above all, in this review, we comprehensively summarized current discoveries concerning STAS from multiple perspectives. STAS is a conspicuous spreading phenomenon of lung cancers indicating worse prognosis; nevertheless, the treatment strategy for patients with STAS remains to be discussed. Further studies are needed to elaborate whether a STAS-positive patient who underwent limited resection needs a second operation or postoperative adjuvant treatment. Meanwhile, although the nutrition resource has been studied, the internal mechanism of STAS formation is largely undiscovered. Whether the capability of detachment-migration-reattachment in STAS tumor cells is achieved at the time of primary tumorigenesis or in the progress of tumor development needs to be studied, and the related signal pathways or genetic alterations need to be explored. With this information, it may be possible to improve the prognosis of patients with STAS-positive lung cancers.

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Vic - This is the reply that I received from my radiologist, Dr. Henning Willers:
"STAS is just tumor cells that can take off from the primary tumor and then spread through the adjacent lung. Plenty of oxygen and nutrients there. Blood vessels will be needed if those cells want to take root somewhere."

Does this help regarding your question of how the cancer would survive.

Merry

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@merpreb

Vic - This is the reply that I received from my radiologist, Dr. Henning Willers:
"STAS is just tumor cells that can take off from the primary tumor and then spread through the adjacent lung. Plenty of oxygen and nutrients there. Blood vessels will be needed if those cells want to take root somewhere."

Does this help regarding your question of how the cancer would survive.

Merry

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Thanks, Merry. Very concise explanation.
I recently read it has been found in 15% to 50%. Now for the research on how best to treat it. Will it be taking out the lobe, drug therapy or close observation. It seems to me a real wildcard with multifocal which already generates primary cancerous nodules.

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@vic83

Thanks, Merry. Very concise explanation.
I recently read it has been found in 15% to 50%. Now for the research on how best to treat it. Will it be taking out the lobe, drug therapy or close observation. It seems to me a real wildcard with multifocal which already generates primary cancerous nodules.

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Vic- A wild card is certainly and good descriptive word!

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Hi everyone. I started this thread and wanted to give you an update on my recovery progress. I am now 4 weeks from surgery and am walking over a mile per day. I am doing some small chores around the house and cooking again. All activity restrictions have been lifted by my surgeon so it is up to me to do anything I can tolerate. I currently take a couple of tylenol (1000mg) mid day to help with the nerve pain and I take 300mg of Gabapentin and 50mg of Tramadol before bed. I am finally getting a good night's sleep and sleeping through the night. The numbness in my stomach area and side is beginning to shrink in size but I am now experiencing a sharp pain in the area which used to be numb. I am assuming this is a side effect of the nerves mending. The pain is not constant and it comes and goes but it gets your attention. I have also developed a nagging dry cough, especially when talking. I will discuss all of this with my lung oncologist when I see him next week to set up my chemo. I have also agreed to participate in an immunotherapy test trial for Stages 1, 2A & 2B adenocarcinoma patients. The test trial with Stages 3 & 4 patients was very successful by significantly raising the survival rate and they now want to see if this will also help the lower stages. It was an easy decision for me to agree to the trial with the risks as this will hopefully help future lung cancer patients.
Thank you all for you kind words and participating in this thread.

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@merpreb

Vic- A wild card is certainly and good descriptive word!

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My Lung Tumor Board has recommended close observation and eventual radiation if needed.

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@steveskolnick

Hi everyone. I started this thread and wanted to give you an update on my recovery progress. I am now 4 weeks from surgery and am walking over a mile per day. I am doing some small chores around the house and cooking again. All activity restrictions have been lifted by my surgeon so it is up to me to do anything I can tolerate. I currently take a couple of tylenol (1000mg) mid day to help with the nerve pain and I take 300mg of Gabapentin and 50mg of Tramadol before bed. I am finally getting a good night's sleep and sleeping through the night. The numbness in my stomach area and side is beginning to shrink in size but I am now experiencing a sharp pain in the area which used to be numb. I am assuming this is a side effect of the nerves mending. The pain is not constant and it comes and goes but it gets your attention. I have also developed a nagging dry cough, especially when talking. I will discuss all of this with my lung oncologist when I see him next week to set up my chemo. I have also agreed to participate in an immunotherapy test trial for Stages 1, 2A & 2B adenocarcinoma patients. The test trial with Stages 3 & 4 patients was very successful by significantly raising the survival rate and they now want to see if this will also help the lower stages. It was an easy decision for me to agree to the trial with the risks as this will hopefully help future lung cancer patients.
Thank you all for you kind words and participating in this thread.

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Great news when you realize you’re actually healing and the pain is leaving!
Please let us know how your trials are going! Very interesting and truly wonderful of you!
Best of Luck and God Bless you!
Cindy

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@steveskolnick

Hi everyone. I started this thread and wanted to give you an update on my recovery progress. I am now 4 weeks from surgery and am walking over a mile per day. I am doing some small chores around the house and cooking again. All activity restrictions have been lifted by my surgeon so it is up to me to do anything I can tolerate. I currently take a couple of tylenol (1000mg) mid day to help with the nerve pain and I take 300mg of Gabapentin and 50mg of Tramadol before bed. I am finally getting a good night's sleep and sleeping through the night. The numbness in my stomach area and side is beginning to shrink in size but I am now experiencing a sharp pain in the area which used to be numb. I am assuming this is a side effect of the nerves mending. The pain is not constant and it comes and goes but it gets your attention. I have also developed a nagging dry cough, especially when talking. I will discuss all of this with my lung oncologist when I see him next week to set up my chemo. I have also agreed to participate in an immunotherapy test trial for Stages 1, 2A & 2B adenocarcinoma patients. The test trial with Stages 3 & 4 patients was very successful by significantly raising the survival rate and they now want to see if this will also help the lower stages. It was an easy decision for me to agree to the trial with the risks as this will hopefully help future lung cancer patients.
Thank you all for you kind words and participating in this thread.

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I appreciate the update, @steveskolnick. I'll also be interested to hear your progress while on the trial for immunotherapy. Maybe start a new discussion?

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