Dry eyes

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren’s syndrome. Does anyone else deal with dry eyes?

Liked by sue225, swift

@deannweir

I have used Xiidra now for about 2 years now. I have had good results with the drops. The taste is not that great but does go away, just don't lay down right after you use. Also, do not miss any doses unless directed by your doctor.

Since you are unable to save any drops I use the whole tube. My eyes are very dry since I live in West Texas and I have Sjogren's.
The drops are quite expensive if you do not have insurance.

Good Luck!

De

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Thanks for sharing your Xiidra experience. I have been putting off starting them. My opthalmologist did mention the taste side effect.

Liked by deannweir

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@sue225

Thanks for sharing your Xiidra experience. I have been putting off starting them. My opthalmologist did mention the taste side effect.

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@sue225 Next appt I have I'm going to talk to the Dr about Xiidra I put Somedays 5-6 times a day

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@lioness

@sue225 Next appt I have I'm going to talk to the Dr about Xiidra I put Somedays 5-6 times a day

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@lioness I lost count years ago of how many times a day I put artificial tears in my eyes. I'd be thrilled if it was five times a day.

Liked by lioness

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@lioness

@maryy I have dry eyes Dr told me to get Systain drops out in 3 x a day also I have glaucoma use a drop at night of Latanoprist drops

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I have dry everything!
Dry eyes(Systane)
Dry mouth(prescription toothpaste)
Nasal spray

I think I’ll stop there😌

Liked by lioness, sue225

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Same for me. Good to know I have agrienf with the same problems. I use Restasis, Systane, and all of the Biotine products.

Liked by lioness

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@helenfrances

I have dry everything!
Dry eyes(Systane)
Dry mouth(prescription toothpaste)
Nasal spray

I think I’ll stop there😌

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I use Refresh for dry eye, Biotene for dry mouth. Any suggestion for dry skin besides Cetaphil and Lubriderm? Thanks!

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@ew100

I use Refresh for dry eye, Biotene for dry mouth. Any suggestion for dry skin besides Cetaphil and Lubriderm? Thanks!

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Same for dry mouth, and Eucerin very dry skin.
It’s the only thing that works for me, besides Rx, but mostly Eucerin.

Liked by lioness

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@ew100

I use Refresh for dry eye, Biotene for dry mouth. Any suggestion for dry skin besides Cetaphil and Lubriderm? Thanks!

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Aquaphor for skin, plugs in the drains of my tear ducts, Oasis Tears Plus during the day and eye “ointment” (not lubricant) at night. I had a cough for years that was misdiagnosed as bronchitis. Guess what? Dry bronchial tubes due to Sjogrens. Who knew? With a humidifier on my cPap machine, I finally have that under control.

Liked by lioness

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@helenfrances

I have dry everything!
Dry eyes(Systane)
Dry mouth(prescription toothpaste)
Nasal spray

I think I’ll stop there😌

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What nasal spray do you use? Some are very drying.
Do you have allergies?

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@sue225

Thanks for sharing your Xiidra experience. I have been putting off starting them. My opthalmologist did mention the taste side effect.

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Good evening @deannweir, @sue225, I have graduated to Xiidra. It seems to be doing the job as I need less of the artificial tears every day. The ophthalmologist told me that the only way I could escape dry eye with small fiber neuropathy was to move to a rain forest. So far MN has higher humidity and more moisture (rain/snow) than any other place I have lived including Hawaii. It is so good to see folks sharing what works or might work for other members. Thank you everyone.

May you all be free of suffering and the causes of suffering.
Chris

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@artscaping

Good evening @deannweir, @sue225, I have graduated to Xiidra. It seems to be doing the job as I need less of the artificial tears every day. The ophthalmologist told me that the only way I could escape dry eye with small fiber neuropathy was to move to a rain forest. So far MN has higher humidity and more moisture (rain/snow) than any other place I have lived including Hawaii. It is so good to see folks sharing what works or might work for other members. Thank you everyone.

May you all be free of suffering and the causes of suffering.
Chris

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@artscaping hi chris, just wondering if you experienced any stinging or burning with Xiidra. You probably dont have to go as far as the rainforest. Ireland would do the trick😉

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@littlesue

Aquaphor for skin, plugs in the drains of my tear ducts, Oasis Tears Plus during the day and eye “ointment” (not lubricant) at night. I had a cough for years that was misdiagnosed as bronchitis. Guess what? Dry bronchial tubes due to Sjogrens. Who knew? With a humidifier on my cPap machine, I finally have that under control.

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I have a dry mouth and dry eyes. I use nasal spray because I have great difficulty breathing through my nose. I get swollen nasal passages. I was being prescribed prednisone to take down the swelling. Now, I have high blood pressure, can't have prednisone. I am not supposed to use the nasal spray but not being able to breathe makes my bp go up higher. The Afrin spray for severe congestion really helps, Thank God. I just wanted to say I was using Biotene for dry mouth until I read the ingredients. Paraben is listed in the ingredients. I had it written down in a little notebook — paraben is cancer causing. Now, I am afraid to use it.

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@woogie

I have a dry mouth and dry eyes. I use nasal spray because I have great difficulty breathing through my nose. I get swollen nasal passages. I was being prescribed prednisone to take down the swelling. Now, I have high blood pressure, can't have prednisone. I am not supposed to use the nasal spray but not being able to breathe makes my bp go up higher. The Afrin spray for severe congestion really helps, Thank God. I just wanted to say I was using Biotene for dry mouth until I read the ingredients. Paraben is listed in the ingredients. I had it written down in a little notebook — paraben is cancer causing. Now, I am afraid to use it.

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A note here. I read on the bottle of Biotene it contains polyparaben and I don't know if it is different than just paraben. I just saw the word paraben and it alerted me to my note. Woogie

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@elmay

Same for me. Good to know I have agrienf with the same problems. I use Restasis, Systane, and all of the Biotine products.

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@elmay Wow so even with Rastasis you still have to use Systane . These dry eyes aren't fun for sure . I have to take allergy pills also I found these help me have you tried them?

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@ew100

I use Refresh for dry eye, Biotene for dry mouth. Any suggestion for dry skin besides Cetaphil and Lubriderm? Thanks!

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@ew100 I drink a lot of water and use St Ives for dry skin or Renewing cream . When out I have Aveeno also .

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