Driving and everyday chores, work?

Not well. At the end of my three days and 21 appointments, I was told that I had been accepted despite being high-risk. HOWEVER, a week later, at home thinking about how to reach out for live donors, I got a call saying they changed their mind. Dr. Prieto previously said yes, but apparently some other surgeons said no. I wish everyone else the best of luck and smooth sailing with their transplants. Happy holidays!

@davem So sorry that you did not get the final result you had hoped for from the evaluation. It is possible, however, to live a normal life for many many years with an eGfr in the 20's. That was my experience. Praying that you will be able to maintain the level of kidney function that you currently have for a long time without the need for dialysis. It is very possible. Meanwhile, wishing you the very best.

Can they explain the change in their minds re your transplant. Mayo is not the only high level care institution. Have you given thought of going somewhere else. Duke, John Hopkins, Temple to name a few. Knowing why Dr. P's team declined the you as a candidate would help greatly in seeking other expert Nephrology care. Wishing you the best and encouraging you not to give up and continue to seek care.

Sorry you went through all this. Can you call Dr. Prieto and get the reasons for their decision? How are you a high risk?

Responding mainly to @lizzylou69 and @davem I am diabetic and have stage 4 related chronic kidney disease (CKD). My eGFR has bounced around between 14 - 42 since 2016. It is currently in the low 30’s. My local nephrologist told me I would eventually need dialysis &/or transplant. I’ve gone through pre-transplant evaluation at 2 transplant centers. One of the centers was Mayo in Rochester. I was seen by Dr. Prieto there. (He has quite the reputation for being able to deal with complications and high risk conditions!) He is not the only one there. Mayo also has a history of a collaborative team approach to integrate the various specialties that are involved in complete patient care. If you are considering transplantation you should be assigned a transplant coordinator. This person does just that, “coordinates”. Dave, you could contact the coordinator to get an explanation for the change in decision regarding your transplant status. That should give you ideas of what you can focus on during your current care. Lizzylou and Dave you can both research transplant centers. Make sure your local provider knows your intentions, has affiliations with the centers and can back up your pursuits. Do everything you can to take care of your health (meds, diet, exercise; social, mental, spiritual supports…..etc). Learn about types of dialysis and consider what resources you have available and would choose should you need to do that along the way. It is a personal journey and there is no 1 right way. In summary I was approved for kidney transplant at both facilities where I was evaluated. I chose Mayo. I’m inactively listed for transplant because my eGFR is too good! It has to be 20 or less for active listing. I’ve been looking for a living donor but have come up short thus far. I am confident that if this is meant to be, it will happen in the right way and time. That is my spiritual faith speaking. My hope and prayer for both of you is the same!

Hi all! Thank you for your caring and helpful advice. My eGfr is in the high 20s @my44 . I'm high risk due to cardio (but they knew that going into the evaluation.) @kidneybean1 and kdalda75 in my efforts to be the best candidate possible, prior to going to Mayo we discovered a couple of blockages which are being handled this week via heart catheterization. The surgeons didn't like the fact that I had a stent near where they would plug in the new kidney. Dr. Prieto thought it wouldn't be a problem. His team apparently felt otherwise. In fairness to Mayo, my home hospital in Dallas, UTSouthwestern also turned me down. I also have an ileostomy on the right side where they like to put the new kidney. Maybe they didn't want to have to work with mirrors to transplant on the left side. (That was a feeble joke!) Anyway, thanks for the wonderful support!! --Dave

Praying that things work out the best for you even with the challenges you have to deal with.
Hold on to your sense of humor...it helps. (Even feeble jokes are allowed. 😊)

@davem my father-in-law underwent angioplasty and a triple bypass in his late 50’s and 60’s. He was able to have a kidney transplant when he was 76. Our daughter (his granddaughter) was his living donor. She was 19 at that time. Their transplant surgery was at the U of M (University of Minnesota) Transplant Center. As I stated above, if this is meant to be, it will happen in the right way, at the right time. Also as @my44 says, you can live a satisfying and fulfilling life even with an eGFR in the 20’s!

@davem, hold on to this post from @cehunt57'. It shows that there's still hope despite the challenges. Hang in there!

Thanks for mentioning keeping a sense of humor. Living with a chronic condition requires a lot of internal work in the form of finding peace and joy in spite of what's going on. Easier said than done, but important to maintain sanity. It doesn't matter what form it takes - laughter, prayer, reiki, nature walks, etc.; we all need something to keep our inner fire going.