Driving and everyday chores, work?

Posted by lizzylou69 @lizzylou69, 2 days ago

Hi! I found out today I have egfr of 23. I would be lying if I said I wasn't afraid. I'm also wondering about driving, work and everyday chores. Can I keep a somewhat normal life? Thank you all in advance.

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Hi Lizzylou69 - my eGFR has been bouncing around in the mid-to high 20’s. I have been non-symptomatic thus far. I have had no issues continuing my normal life.

However, my nephrologist recently told me I need to learn about possible (probable?) next steps including transplant and different methods of dialysis. That learning finds me at the Mayo Clinic in Rochester this week where I have been going through an evaluation as a candidate for a transplant. My “home” hospital would not accept me as a transplant candidate, but Mayo did. I could go on and on, but my point is I’ve been living a normal life and intend to do that going forward, embracing my new normal.

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@lizzylou69 Welcome to Mayo Clinic Connect! It can be mighty confusing to get news of a lowered eGFR, isn't it?

Let's start at the basics. Do you know the cause of your lowered kidney function? Uncontrolled high blood pressure or diabetes are the two leading causes. Other possible causes are medication interaction, genetic concerns, or a cute kidney injury. Getting a handle on the underlying issue is important.

Kidney disease can be a tricky situation. Often our bodies slide into decreased kidney function, and we aren't really aware of anything wrong. You can do anything you feel like doing. What many people see is that after the issue is being addressed, they realize how tired they were getting, or unable to do things as well as before!

If you care to share, please tell me me more about your kidney disease issue?
Ginger

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@davem

Hi Lizzylou69 - my eGFR has been bouncing around in the mid-to high 20’s. I have been non-symptomatic thus far. I have had no issues continuing my normal life.

However, my nephrologist recently told me I need to learn about possible (probable?) next steps including transplant and different methods of dialysis. That learning finds me at the Mayo Clinic in Rochester this week where I have been going through an evaluation as a candidate for a transplant. My “home” hospital would not accept me as a transplant candidate, but Mayo did. I could go on and on, but my point is I’ve been living a normal life and intend to do that going forward, embracing my new normal.

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Thank you for your reply. I wish you the best. 🙂

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@gingerw

@lizzylou69 Welcome to Mayo Clinic Connect! It can be mighty confusing to get news of a lowered eGFR, isn't it?

Let's start at the basics. Do you know the cause of your lowered kidney function? Uncontrolled high blood pressure or diabetes are the two leading causes. Other possible causes are medication interaction, genetic concerns, or a cute kidney injury. Getting a handle on the underlying issue is important.

Kidney disease can be a tricky situation. Often our bodies slide into decreased kidney function, and we aren't really aware of anything wrong. You can do anything you feel like doing. What many people see is that after the issue is being addressed, they realize how tired they were getting, or unable to do things as well as before!

If you care to share, please tell me me more about your kidney disease issue?
Ginger

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I had a infectious kidney stone. I was in hospital for two Weeks with sepsis from that stone. Had atrophy in one kidney and started down hill there. I had many kidney stones taking out over the years. Thank you for your reply.

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lizzielou69
I agree with davem. Mayo Clinic Rochester Minnesota has Dr. Prieto a wonderful transplant surgeon and team. Where do you live? My nephrologist recommended I look into the shared paired living donor program.
Where do you live davem?
I live in NY, so if and when I need a transplant, it would be I would have to fly out to Minnesota. I’m wondering how many here in this group have done this?

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@lizzylou69 I am almost one year post kidney transplant but. even up to the time of the transplant when my eGfr was even less than 23, I was able to live my normal life. In order to help maintain and preserve your remaining kidney function, be sure to take your meds if any are prescribed, keep your appointments with your nephrologist, eat a kidney-friendly diet, and exercise. I was able to live a normal life for many years with stage 4 kidney disease. Wishing you all the best.

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@my44

@lizzylou69 I am almost one year post kidney transplant but. even up to the time of the transplant when my eGfr was even less than 23, I was able to live my normal life. In order to help maintain and preserve your remaining kidney function, be sure to take your meds if any are prescribed, keep your appointments with your nephrologist, eat a kidney-friendly diet, and exercise. I was able to live a normal life for many years with stage 4 kidney disease. Wishing you all the best.

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Thank you! I hope you have many many more years to enjoy life.

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@lizzylou69

Thank you! I hope you have many many more years to enjoy life.

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Thank you, @lizzylou69, and I wish the same for you, too! 💕

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