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yorkshirerose2016 avatar

Dr can’t help my IBS. Now what?

Digestive Health | Last Active: Aug 15 9:34am | Replies (47)

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Profile picture for momac59 @momac59

Yup, I can relate. Last September my hubby and I were traveling out west, mostly Montana in our RV & I git not only cdiff but ecoli! We are always so careful with clean water that is triple filtered so obviously it wad a food source. This is always a fun bathroom experience in an RV traveling!
Couldn’t wait to get home. Treated by Gastro bit it took so long even after the gold standard top antibiotic. By January I went back again & Dr. said it is post infectious IBS. Id have to be patient. He did give me a drug called Cholestipol that actually helped a bit with cramping & watery diarrhea.
Fast forward March; cdiff recurrence. UGH!! But in all fairness, I have autoimmune disease that played into my immune system not being able to handle the cdiff that is in all our GI systems. I was actually in a huge autoimmune firestorm & very sick. My body couldn’t handle anything! I ended up at Mayo in AZ for 2 weeks. They ate AMAZING!!!
Is There anyway you could try to get into a Mayo Gastroenterologist? There are Mayo associated clinics popping up all over besides the 3 hospitals around the country.
They are doing amazing research work on the gut especially now.
Even if not keep going with finding a new GI. You really have to be your own best advocate. You deserve not to be dismissed!!
I wish you lot of luck & good health.

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Replies to "Yup, I can relate. Last September my hubby and I were traveling out west, mostly Montana..."

@momac59 Thanks for responding!this feels like me!
Ugh I feel your pain with c diff, my dr in the UK took two weeks to diagnose it as apparently it’s an “old people” condition. They were surprised when I was finally diagnosed and that was only because I ended up being admitted to hospital.

I am two hours from Jacksonville so I will try and get in contact with the Mayo clinic there. I just want some sort of “normal” life back. Not living in a toilet would be amazing!

Is there a certain protocol you have to follow to get an appointment with them?