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Does MGUS ever go away?
Two years ago I had a fractured hip and replacement. That is when my blood work went off. The M spike was there and other tests were off. Bone Marrow etc. Now two years later my blood work is normal and shows no signs of the M spike or abnormalities. Does MGUS ever go away. ? I cant imagine how it could just disappear. Two years ago the hip must have released all those RBC's into my blood. But what happened to MGUS?
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Spontaneous Disappearance (Rare): In very rare instances, with very low levels of the abnormal protein (under 5 g/L), the protein can disappear spontaneously during monitoring, according to the NIH.
My spike has been between 3 to 5 for 10 years. Coincidentally, my pain has been chronic for over 19 years. I had never been tested for MGUS until 10 years ago for something unrelated. I now find there is a documented association between the M spike and Rheumatoid Arthritis; which I was just diagnosed with two days ago.
Terri
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1 Reaction@rocksology hi Terri. I thought I remembered that the rheumatology research had decided that the dots between RA and MGUS were not associated. This does refute earlier findings and if you use AI, it bases its response on the outdated information.
It’s always good to talk to your hematologist/oncologist, however. None of us are physicians and there is conflicting information out there, so I’m always careful not to speak as an authority because I am not. I feel like I’m always chasing information to learn.
https://www.myeloma.org/videos/autoimmune-diseases-are-not-associated-mgus-results-population-based-istopmm
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2 ReactionsI’m absolutely not anyone who speaks with authority about anything. I’m just a research patient who doesn’t trust those with authority because I’ve been gaslit for so many years. Sadly, we can no longer trust anything anymore - especially anything in research healthcare.
I’m sorry if I came over as “authoritative”, still continuing to research. I am not a medical professional, as are most of the group members. It won’t happen again. I’ll keep to myself.
Peace and freedom from pain,
Terri.